FPWR Five-Year Research Plan: Dr. Nathalie Kayadjanian [VIDEO]

This blog contains excerpts from the FPWR Five-Year Research Plan Overview presented by research team member Nathalie Kayadjanian at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below.

In case you don't have time to watch the full video, we've captured some of the key points in the notes below.

Nathalie, who is neuroscientist by training and an expert in translational biomedical research, joined FPWR in 2015 as the Director of Translational Research. Her presentation, which includes Q&A, is approximately 38 minutes long, covering FPWR’s mission, our research approaches and our path forward.


Topics: Research

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.