The Foundation for Prader-Willi Research is excited to announce the receipt of a financial award from the Moriah Foundation which will be used to support the development of a Mental Health Guidebook for Prader-Willi Syndrome (PWS). Mental health and behavior challenges affect a large percentage of individuals with PWS and their families. These challenges are often under-appreciated and yet the impact on families and individuals with PWS can be profound.
With support from the Moriah Foundation, the Foundation for Prader-Willi Research is developing a guidebook which will help families better understand potential early warning signs, the best ways to meet these challenges head on, and work with health care providers to get appropriate care for their loved one with PWS. The guidebook will help families become empowered to cope with these symptoms as they arise, know when to get help and provide reassurance for families going through this difficult aspect of PWS. We expect the Guidebook to be available mid-2020.
FPWR thanks the Moriah Foundation for the support which will make this invaluable resource possible!