Topics: Research
You may have seen requests for parents to donate the lost baby teeth of their children with PWS for research. What can these baby teeth do for Prader-Willi research? The answer is that Dr. Lawrence Reiter has implemented a novel technique for studyin...
The potential overlap between PWS and symptoms of autism spectrum disorder (ASD) has been the subject of discussion and research for some time now. In the past, research found estimates of autism in people with PWS to be as high as 41%. But on June 5...
Topics: Research
A special contribution by guest blogger Blake Brenneman Blake shared his story via our Stories of Hope questionnaire.
Topics: Stories of Hope
On June 23, FPWR research staff members Theresa Strong and Jessica Bohonowych presented a webinar reviewing recent initiatives funded through FPWR. The webinar is available on video below. It includes an overview of newly funded studies, new opportun...
Topics: Research
A special contribution by guest blogger Laura Capone Laura shared her story via our Stories of Hope questionnaire. Has your child exceeded your expectations? A million times yes! We were given a very low expectation for Tommy's future, but he is a wa...
Topics: Stories of Hope
Cognition, social behavior, and decision-making are common challenges among individuals with PWS. The brain region that controls many of these functions is called the frontal lobe. To date, there has been little work on understanding differences in t...
Topics: Research
There has been much recent interest in the Prader-Willi syndrome (PWS) community regarding vagus nerve stimulation, a novel approach to treat PWS behavior issues, which is being led by Dr. Tony Holland and supported by FPWR. In fact, Dr. Holland, a p...
Topics: Research
A special contribution by guest blogger, dad, and One Small Step host Adam Larson An expecting father has crystal clear vision. You are at the moment when all you will ever amount to is about to be tested. All of your talents will be called upon and ...
Topics: Stories of Hope
Many may remember Dr. Rudolph Leibel’s presentation on stem cells and Prader-Willi Syndrome (PWS) at the FPWR Research Conference in November 2014. He also published a breakthrough discovery in the Journal of Clinical Investigation, with Lisa Burnett...
Topics: Research