The Top Ten Reasons to Take One SMALL Step in 2014 !

Recently we asked members of our One SMALL Step facebook page to share their reason for hosting a One SMALL Step event. Here are their top ten reasons. 

  • Hosting an event is like teaching a school lesson....the one that often learns the most is the teacher. There is so much of your self that goes into the preparation...that at the end, the gratification and experience gained through the process is priceless-- Kara Prince

  • To come together as a family/community. It brings you closer and allows you to connect with families affected by PWS that you may not have met otherwise. -- Vee Baker and Josh Gilliam

  • It allows me the opportunity to change my child's future. Money funds research and research provides insight into potential therapies that will help our children:) -- Marina Jones

  • To take control of an uncontrollable situation. By hosting a One SMALL Step event, I felt like I was given the opportunity to be part of the fixing ... To be part of the solution, and to take control of what we felt was an uncontrollable situation. -- Dana Capobianco

  • It's a way of transforming hope into action. Each small step brings us that much closer to a cure. -- Rebecca McWilliams

  • One SMALL Step brings awareness to your community. -- Sarah Peden

  • To raise lots of money to eliminate the challenges of PWS. -- Tanya Johnson

  • Often we are so caught up in how challenging this diagnosis is for our nuclear family that we forget how hard it is on our extended family and friends to watch us go through it. They want to help; they want to alleviate some of our burden, but just don't know what they can do. OSS events give our family and friends an opportunity to help in a way that can truly make a difference. -- Ronda Jensen

  • “Good things may come to those who wait… but greater things come to those whomake it happen”. For us there was no better way to ‘make it happen’ than by hosting a walk. -- Joe Olivacz

  • No regrets. I don't want to say to myself one day "I should have". I only Want to say "I've done everything I could. With everyone's help." -- Caroline Richard

You can learn more about the One SMALL Step program in our recorded webinar from February 2014.  Download the webinar here. Sign up to host an event today or email for more information.

Topics: Research

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.