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Foundation for Prader-Willi Blog | Research (36)

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Mental Health in PWS – Mindfulness, Exercise May Help

Staying mentally well can be a challenge for all of us, but is particularly difficult for those with PWS. While medications can be an important part of maintaining good mental health in PWS, we're always on the lookout for approaches and intervention...
July 11, 2016 Read More

Topics: Research

New CRISPR Gene Editing Options Focus on RNA

If you pay attention to science 'buzz', you've probably heard of CRISPR technology. This technology allows scientists to precisely modify DNA sequences. First adapted for genome editing in 2013, use of CRISPR systems has exploded in research labs, al...
June 27, 2016 Read More

Topics: Research

Telehealth: PWS Healthcare Through Your Computer

Telehealth, or the "delivery of health-related services and information via telecommunications" such as through a computer is a growing trend in health care. A recent report from a group at Michigan State University shows how their online program is ...
June 22, 2016 Read More

Topics: Research

Ghrelin Research Explores Switch from Failure to Thrive to Obesity

Dr. Maithé Tauber and colleagues recently reported interesting results on the hunger hormone ghrelin. They show that the ratio of active (AG) to inactive (UAG) forms of ghrelin changes over time. They hypothesize that this change may play a role in t...
June 20, 2016 Read More

Topics: Research

Role of Magel2 in Feeding and Energy Is Focus of FPWR-Funded Study

A new study on the role of Magel2 in feeding and energy helps define the underlying biology of ‘the problem’ in appetite and energy balance brain circuits in PWS. It also suggests that therapeutic approaches to strengthen the anorexigenic circuitry a...
June 17, 2016 Read More

Topics: Research

How's mom doing?

It’s not news to moms of children with PWS that ours is not an easy road. Our kids face medical problems, challenges in their schools, and often have behavioral issues that can be exhausting. Then there are the doctors’ appointments, therapies, socia...
May 26, 2016 Read More

Topics: Research

How You Can Ensure a Brighter Future

How can we make the future a bit brighter for our loved ones with Prader-Willi syndrome? It starts with us! Multiple potential drug treatments for Prader-Willi syndrome are currently in clinical trials and more are coming down the pipeline. Staying i...
April 13, 2016 Read More

Topics: Research

Why PWS Research Will Benefit Every Person with PWS

Is there a place in the FPWR community for parents of adult children with PWS? I have frequently been asked if the work of the Foundation for Prader-Willi Research is only for ‘young families’ and if there is a place in the FPWR community for parents...
April 5, 2016 Read More

Topics: Research

FPWR Announces Grant Awards totaling $870,000

The Foundation for Prader-Willi Research (FPWR), in collaboration with FPWR-Canada, FPWR-UK, Prader-Willi France and PWSA-UK, is thrilled to announce the first round of PWS research grant recipients for 2016! Ten outstanding projects were selected fo...
March 16, 2016 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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