FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits, while others can be completed remotely. Some trials are testing new drugs, while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: May 5 2025 - 02:43 PM
Human beings have adapted to our planet's 24-hour days. The body goes through daily cycles that affect things like metabolism, physical functions, and mood—these 24-hour cycles are called the circadian rhythm. What you may not know is that this adaptation affects processes at a more basic level...
Source: FPWR Blog
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Published: May 5 2025 - 09:00 AM
We’re excited to share an important opportunity for families in the Prader-Willi syndrome (PWS) community to contribute to groundbreaking research that could help shape the future of treatments for hyperphagia. The MY-HQ ("my hyperphagia questionnaire") project, led by Elizabeth Roof and her team...
Source: FPWR Blog
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Published: May 5 2025 - 09:00 AM
Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares insights on supporting siblings and recognizing serious mental health challenges in her new guide. Raising a family is never easy, and parenting a child with PWS adds extra layers of complexity. Because of the...
Source: FPWR Blog
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Published: April 4 2025 - 04:30 AM
At the 2024 FPWR Conference, the session "Growing Up with a Sibling with PWS" offered a heartfelt and detailed look into the experiences of siblings of children with Prader-Willi Syndrome (PWS). Led by Dr. Lauren Schwartz Roth, a researcher and mother, the session shared insights from her year-long...
Source: FPWR Blog
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Published: December 12 2024 - 08:45 AM
