FPWR is pleased to offer research webinars throughout the year to present you with the latest in PWS research!

Research Grants Webinar, Spring 2017

A review of recent initiatives funded through FPWR. Includes an overview of newly funded studies, new opportunities and advances in PWS research. Watch Webinar.

 

Research Grants Webinar, Spring 2016

Ten outstanding projects were selected for funding, totaling $870,000 in support. These projects address a variety of topics important in PWS, including mental health, behavior, diet, hypotonia, drug development and genetic therapy via maternal chromosome activation. Information on these projects and our Research Grants Program can be viewed on our most recent Research Program Webinar.

 

Phase 2 Investigation of Intranasal Oxytocin, November 2015

Dr. Hollander and his team from Montefiore Medical Center and Albert Einstein College of Medicine are conducting a Phase 2 study to investigate the effects of intranasal oxytocin (OXT) in children and adolescents with PWS. They will study how OXT administration impacts eating, repetitive behaviors, and social cognition in PWS. This webinar reviews the rationale for testing OXT in PWS, describes the study protocol and outcome measures, and reviews eligibility criteria. Click here to view the Webinar

 

Rhythm RM-493, May 2015

Learn more about clinical trial participation opportunities. This  webinar will spotlight Rm-493: a phase II study. An overview of the trial will be given by Rhythm and will include the study design and purpose, inclusion criteria and logistics  and learn about study logistics from Dr. Jennifer Miller the principal investigator at University of Florida, one of the Rhythm study sites.

Webinar

 

BestPWS Clinical Study, January 2015

Learn more about clinical trial participation opportunities. This first webinar in our clinical trial series will spotlight bestPWS: a phase III study of Beloranib. An overview of the bestPWS trial will be given by Zafgen and will include the study design and purpose, inclusion criteria and logistics.  Hear directly from a participating family about their experience, and learn about study logistics from Elizabeth Roof who is coordinating the study at Vanderbilt University, one of the Beloranib study sites.

Webinar

 

Patient Voices Survey Summary, November 2014

A summary of over 700 responses from the PWS community weighing in on our greatest challenges.

Patient Voices Webinar Slides

 

Research Programs Updates: The Latest 10 Grants Announced! May 2014

A review of the initiatives funded through the FPWR and One SMALL Step programs. Includes an overview of newly funded studies, and new opportunities and advances in PWS research.

Webinar Slides – Research Grants 2014 Final

Clinical Trials Webinar, January 2014

2014 promises to be an exciting year for PWS research as new clinical trials get off the ground. Several new studies around the country will be evaluating potential therapies in children and adults with PWS. In this webinar, Theresa Strong Ph.D and Jennifer Miller MD. take you through the clinical trial process. You will learn more about the goals of clinical trials, what you should expect and the questions you should be asking.

Download slides from the Webinar
Clinical Trials Webinar FAQ

Research Programs Updates, Outcomes and Opportunities, July 2013

A review of the initiatives funded through the FPWR and One SMALL Step programs. Includes an overview of newly funded studies, outcomes from previously funded projects as well as new opportunities and advances in PWS research.

Download the presentation here