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The Time Is NOW: Online Access

The experience of attending an FPWR Research Conference cannot be substituted, however, for our families who are unable to join us November 15-16, we will be offering LIVE access to limited presentations! Join us through webinar for our Research...

Cartwheels for a Cure

Friends of FPWR Spotlight: We’ve flipped for this fundraising idea! David and Andrea Piercey of Massachusetts took a little inspiration from the ALS ice bucket challenge that has taken social media by storm…and literally flipped it!  Just last month, Dave and...

Webinar: Fundraising Outside the Walk

You are invited to attend a free webinar: Fundraising Outside the Walk. Have you considered hosting a fundraising event to benefit PWS research? Join four veteran event hosts as they share their tips for hosting events “Outside the Walk”. Sarah...

Theresa and PWSA(USA) representatives meet with the FDA

PWS at the FDA

On Tuesday, June 17, key leaders and scientific staff members at the FDA took time out of their busy schedules to learn about the serious challenges of PWS, to hear about our loved ones’ unmet medical needs, and to...