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Webinar: Fundraising Outside the Walk

You are invited to attend a free webinar: Fundraising Outside the Walk. Have you considered hosting a fundraising event to benefit PWS research? Join four veteran event hosts as they share their tips for hosting events “Outside the Walk”. Sarah...

Theresa and PWSA(USA) representatives meet with the FDA

PWS at the FDA

On Tuesday, June 17, key leaders and scientific staff members at the FDA took time out of their busy schedules to learn about the serious challenges of PWS, to hear about our loved ones’ unmet medical needs, and to...

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Clinical Trials Alert – May 2014

To sign up for our clinical trials alert email, click here. There are several new opportunities for PWS families to participate in clinical studies.  You can learn more about the studies below, and others, at fpwr.org or atclinicaltrials.gov. We encourage you...

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Gearing Up for PWS Awareness Month

  May is Prader-Willi Syndrome Awareness Month, and FPWR is making an effort to help it’s community members raise LOTS of awareness in their homes, communities, places of work, and across the world wide web. Each week during the...