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Top 10 Reasons to Attend the 2024 FPWR Family Conference

Discover the top 10 reasons to attend the 2024 FPWR Family Conference in Atlanta this September!

General Dates and Info

Join us September 27–28 for our annual gathering of movers, shakers, thinkers, and doers at this year’s FPWR Family Conference! 

It's a unique opportunity to connect, learn, and grow alongside like-minded individuals who are dedicated to making a difference in the lives of those affected by these syndromes. Don't miss out on this incredible gathering of minds and hearts!

Here are the top 10 reasons you need to be there:

10. Atlanta 

Join us in the Buckhead area of Atlanta! It’s where tree-lined residential streets filled with the most remarkable architecture and landscapes in all of the South blend with trendy shopping malls, chic restaurants, bars, and rooftop lounges. Alongside Buckhead’s fine dining scene, upscale shopping, and sparkling nightlife, you’ll find attractions, museums, parks and trails, theaters, and more. No matter what you’re looking for, Buckhead has something for everyone.

The options are endless! Learn more about the can't-miss things to see and do in Atlanta!

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9. Empowerment

Having a child with PWS and SYS changes who we are. But that doesn’t mean we can’t rise stronger and more hopeful for a better future. Coming to an FPWR conference is a first step to taking control of your future with PWS. It's a transformative opportunity to connect with a community that understands, supports, and empowers us to navigate this complex path with courage and determination.

8. Direct Access to Current Information About PWS & SYS

Nowhere else in the world will you get to hear from experts such as Dr. Diane Stafford, Patrice Carroll, Elizabeth Roof, Dr. Christian Schaaf, Dr. Deepan Singh, and other leading PWS and SYS researchers and experts all in one place. Find out what cutting-edge research is being done in the PWS and SYS worlds, straight from the researchers themselves!

Dr Salehi7. Meet the Experts

There are Q&A sessions after every presentation and plenty of opportunities to meet the physicians and researchers at the Welcome Reception Friday night, or over coffee and lunch breaks. You get the chance to ask your questions and get personalized advice for your loved one in an intimate setting.  

6. Educate Your Loved Ones

Research is hard to understand sometimes. But, when you have the experts at your disposal, you can ask the questions you need and then educate everyone you know about up-to-date PWS treatments, clinical care, research, and statistics. 

5. Make New Friends

There is simply no way to explain the feeling of being in a room full of people who “get it.” A room full of parents who have a child with Prader-Willi syndrome and Schaaf-Yang syndrome You have to be there to truly understand. Lifelong friendships are made at every conference.

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4. Conference Location

You can enjoy the beautiful Grand Hyatt Atlanta Buckhead knowing you received an AMAZING room rate. The Grand Hyatt is within walking distance of food, shopping, and parks. Enjoy the Welcome Reception on Friday night with a bar and hors d'oeuvres.

3. Help Other Parents

Either you ARE a new parent or you HAVE BEEN a new parent. At some point, we all need a little help navigating the world as special needs parents. Attending a conference creates an environment to ask for help and equips you to help the next generation of PWS and SYS parents, so that nobody has to start this journey alone.


2. Have Fun

We have a packed educational program, but before and after sessions, the FPWR family is known for being an uplifting, encouraging and downright fun group of people. After meet and greets on Friday, you'll be ready to share a meal over lunch on Saturday with your new friends. Saturday evening enjoy the Live Life Full Gala at Sweetwater (tickets sold separately in registration)! We guarantee the connections you make will last a lifetime.

1. Get Involved

Have you ever wondered how to get involved with FPWR or want to be an advocate in your area for PWS and SYS? Attending a conference will get you connected to some of the most passionate PWS and SYS parents; all who welcome you with open arms to join our community and help change the world of PWS and SYS!

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Register for the 2024 Conference

Registration is now open for FPWR’s Annual Family Conference in Atlanta on September 27–28. FPWR is offering a very special sale rate! Prices are being cut from $275 (regular price) to $250 from March 15–April 1. After that, tickets will go up to their regular price. Use code EARLYBIRD2024 during checkout. This is our biggest sale of the year, and you will not want to miss it!

Register now to save your spot at the sessions you want to attend. Learn more about the conference and register here!


Topics: News

Melissa Demand


Melissa became involved with FPWR in 2014 after her son, Kemett, was diagnosed with PWS. That year she hosted her first One SMALL Step Walk which raised over $115,000 and earned herself the honor of hosting the FPWR conference in Austin, TX in 2015. Melissa has over 9 years of fundraising and development experience and a Masters in Social Work from The University of Texas with an emphasis on Community and Administrative Leadership. Melissa will be assisting with database management and administrative duties.