Latest News

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

News (2)

Collage of attendees connecting at the FPWR Family Conference alongside a small-group workshop led by a speaker.
FPWR 2026 Family Conference: Deep Dive Workshops
At this year's FPWR Family Conference, you'll find more than traditional presentations. Explore interactive workshops featuring expert guidance, practical strategies, and meaningful conversations with other families. Behavior & Mental Health: Ages 5 and Up Behavioral and mental health challenges can
How Two Moms Turned Fear Into Action Through One Small Step
When Amy Reinmuller first considered hosting One Small Step Baton Rouge, the idea stayed in the “maybe someday” category for a long time. Fear kept getting in the way. “What if nobody comes?” she remembered thinking. “What if I can’t
Addison's Army Started with One Small Step
The night before One Small Step Maryland, Jen Lieberman was worried nobody would come. By the next morning, her family was scrambling to find more raffle tickets. "My brother-in-law literally ran to Staples," Jake laughed. "We were looking around thinking,
Parents Seek Answers, Leaders Step Forward
In January 2008, The Dallas Morning News published an article titled “Parents Seek Answers.” At the center of the story was Kathryn McGhee, a mother navigating the daily realities of Prader-Willi syndrome while also helping shape a growing research movement
Global Prader-Willi Syndrome Registry logo over a blue background with data charts.
The Global PWS Registry: Turning Lived Experience Into Better Care
Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated. In a recent episode of the PWS United podcast, members of FPWR’s research team shared how ten years of family participation in the Global PWS Registry

Subscribe to hope.

If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Evan and Dr. Fallah