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2020 FPWR Conference Speakers — Sneak Preview!

Hear the latest in PWS research from experts in the field and engage one-on-one with researchers finding treatments for our loved ones with PWS.

Speaker Highlight Blog Conference 2020

You won’t want to miss these speakers at the 2020 FPWR Family Conference this October in Chicago, Illinois.

Inspiration, hope, people who get it — that’s the 2020 FPWR Family Conference! You don’t want to miss joining like-minded game-changers with direct access to the people, knowledge, and inspiration you need to help your child.  

Hear the latest in PWS research from experts in the field and engage one-on-one with researchers who have a deep interest in finding treatments for our loved ones with PWS. Experts include:

  • Dr. Jessica Duis
  • Dr. Harold van Bosse
  • Patrice Carroll
  • Elizabeth Roof

and many more!

If you're a member of the PWS community, we have something for YOU because this conference is for YOU! The FPWR conference is for families of all ages— we have something for everyone! Highlighted sessions include:

Children Ages 0-2

Children School Age

All Ages


New Diagnosis Pre Conference Session

The Orthopaedics of Prader-Willi Syndrome

Current Standards of Care- All Ages

PWS Clinical Trials Panel

Standard of Care for PWS for Children Ages 0-2

Therapeutic Interventions

Self Care Workshop

The PWS Research Team Panel

Parent to Parent- Maximizing your Insurance Plan

Parent training- Social Function in People with PWS

Acceptance and Commitment Training Parent Intervention

PWS Researcher Fireside Chat


Behavior Strategies


With premier experts in their fields and the backdrop of Chicago this year’s conference promises to be an event to remember! Register now during our St. Patrick’s Day Sale going on March 1-17. Prices are being cut from $225 (regular price) to $175*.  After that, tickets will go up to their regular price. This is our biggest sale of the year, and you will not want to miss it!

We have an amazing deal on rooms ($196/night) but they are limited, and you will only get the discount code after you register for conference! Register for the conference here.

We look forward to seeing you in Chicago!

Register for the 2020 Conference Now!

Topics: News

Melissa Demand


Melissa became involved with FPWR in 2014 after her son, Kemett, was diagnosed with PWS. That year she hosted her first One SMALL Step Walk which raised over $115,000 and earned herself the honor of hosting the FPWR conference in Austin, TX in 2015. Melissa has over 9 years of fundraising and development experience and a Masters in Social Work from The University of Texas with an emphasis on Community and Administrative Leadership. Melissa will be assisting with database management and administrative duties.