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Jessica Bohonowych

Jessica Bohonowych is a graduate of Duke University, and holds a PhD in Pharmacology and Toxicology at the University of California, Davis. Incorporating her research background, knowledge of pharmacology and drug development, and teaching experience, Jessica works with Theresa Strong in managing FPWR’s grant portfolio, communicating research results and breakthroughs to our community, aiding in special projects such as the Clinical Trials Initiative and Molecular Resource Center, and is heading the development of the Global PWS Registry.

Smiling baby lying on a soft blanket, wearing a floral outfit and pink headband while holding a growth hormone injection pen.

PWS Registry Data: Growth Hormone Use in People with PWS

November 20, 2017

Growth hormone therapy (GHT) has become an important part of care for many people with Prader-Willi syndrome (PWS). Data collected through the Global PWS Registry offers an opportunity to better understand how often people with PWS use growth hormone, when

Altered Link In Brain Regions Could Play Role In PWS Hyperphagia

August 22, 2017

As with many neurodevelopmental disorders, individuals with PWS often struggle with developmental delays and impaired cognition. Within the Global PWS Registry, 75% of participants who have had IQ testing scored with some level of intellectual disability. In an effort to

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Brain Stimulation (tDCS) Research Shows Promise for Hyperphagia in PWS

July 19, 2017

Many of the clinical trials for therapies in PWS involve a drug treatment of some sort. However, there is also ongoing work exploring other ways to improve behaviors and possibly hyperphagia (excessive appetite) in PWS. One such approach is transcranial

Dr. Hof Looks for Link Between Brain Neurons and Mental Health in PWS

June 21, 2017

Cognition, social behavior, and decision-making are common challenges among individuals with PWS. The brain region that controls many of these functions is called the frontal lobe. To date, there has been little work on understanding differences in this part of

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Targeted Reactivation of Silenced PWS Genes as a Potential Therapy

June 7, 2017

All individuals with Prader-Willi syndrome (PWS) have at least one copy of the PWS region from their mother, but it is turned off through a normal biological process called genomic imprinting. Normally, the chromosome 15 that is inherited from the

New Evidence Supports Benefits of Hippotherapy

April 12, 2017

A new study highlighted in Medical News Today further supports the benefits of hippotherapy with regards to behavioral tasks and cognitive development. Hippotherapy is the use of horseback riding as a therapeutic or rehabilitative treatment. The full article is available

Identifying the Role of the 'Hunger Hormone' Ghrelin

February 14, 2017

There are numerous hormones that are intricately involved in connecting the stomach to the brain and telling us when we are hungry or full. One of these hormones is ghrelin, which is often referred to as "the hunger hormone." Although

Long-Term Safety and Benefits of Growth Hormone Therapy for PWS

January 25, 2017

Research supports the benefits of growth hormone (GH) therapy for people with PWS, with more than two decades of research and clinical experience providing reassuring evidence of safety. Like any treatment, GH requires appropriate screening and monitoring, particularly for health

The Value of Patient Input and Perspective in Drug Development

January 9, 2017

Janet Woodock, MD, Director of the Center for Drug Evaluation and Research at the FDA, recently highlighted how the FDA is placing a high priority on patient input and perspective in the drug development process. The agency recognizes that patients,

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