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Jessica Bohonowych

Jessica Bohonowych is a graduate of Duke University, and holds a PhD in Pharmacology and Toxicology at the University of California, Davis. Incorporating her research background, knowledge of pharmacology and drug development, and teaching experience, Jessica works with Theresa Strong in managing FPWR’s grant portfolio, communicating research results and breakthroughs to our community, aiding in special projects such as the Clinical Trials Initiative and Molecular Resource Center, and is heading the development of the Global PWS Registry.

Dr. Nectow Researches Role of DRN Brain Region and Hyperphagia in PWS

February 2, 2018

Researchers throughout the world are hard at work trying to identify the biological mechanism(s) that drive hyperphagia (excessive eating) in PWS. One of these scientists is Dr. Alexander Nectow at Princeton Univeristy. Dr. Nectow's group studies a region of the

Altered Link In Brain Regions Could Play Role In PWS Hyperphagia

August 22, 2017

As with many neurodevelopmental disorders, individuals with PWS often struggle with developmental delays and impaired cognition. Within the Global PWS Registry, 75% of participants who have had IQ testing scored with some level of intellectual disability. In an effort to

Dr. Hof Looks for Link Between Brain Neurons and Mental Health in PWS

June 21, 2017

Cognition, social behavior, and decision-making are common challenges among individuals with PWS. The brain region that controls many of these functions is called the frontal lobe. To date, there has been little work on understanding differences in this part of

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Targeted Reactivation of Silenced PWS Genes as a Potential Therapy

June 7, 2017

All individuals with Prader-Willi syndrome (PWS) have at least one copy of the PWS region from their mother, but it is turned off through a normal biological process called genomic imprinting. Normally, the chromosome 15 that is inherited from the

Evidence Supports Benefits of Hippotherapy

April 12, 2017

A study highlighted in Medical News Today further supports the benefits of hippotherapy with regard to behavioral tasks and cognitive development. Hippotherapy is the use of horseback riding as a therapeutic or rehabilitative treatment. The full article is available on

Identifying the Role of the 'Hunger Hormone' Ghrelin

February 14, 2017

There are numerous hormones that are intricately involved in connecting the stomach to the brain and telling us when we are hungry or full. One of these hormones is ghrelin, which is often referred to as "the hunger hormone." Although

Long-Term Safety and Benefits of Growth Hormone Therapy for PWS

January 25, 2017

Research supports the benefits of growth hormone (GH) therapy for people with PWS, with more than two decades of research and clinical experience providing reassuring evidence of safety. Like any treatment, GH requires appropriate screening and monitoring, particularly for health

The Value of Patient Input and Perspective in Drug Development

January 9, 2017

Janet Woodock, MD, Director of the Center for Drug Evaluation and Research at the FDA, recently highlighted how the FDA is placing a high priority on patient input and perspective in the drug development process. The agency recognizes that patients,

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Mental Health Professionals Release 10 PWS Research Recommendations

October 13, 2016

Mental health professionals have published 10 recommendations for Prader-Willi syndrome (PWS) research. These recommendations create urgency for further research and treatments to improve quality of life and increase independence for people with PWS. The recommendations are included below, from the

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