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    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

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    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

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    PWS Registry

    A healthcare professional holding a clipboard talks with a woman resting in a hospital bed.
    Gastrointestinal Issues in PWS: What the Global PWS Registry Data Shows
    Gastrointestinal complications can affect individuals with Prader-Willi syndrome throughout their lives. Some issues may require ongoing medical management, while others can lead to hospitalization or surgery. Understanding how frequently these complications occur can help families and clinicians recognize potential concerns
    Theresa Strong accepts a NORD award on behalf of the Foundation for Prader-Willi Research, smiling beside a presenter onstage.
    FPWR Receives 2026 NORD Rare Impact Award
    The Foundation for Prader-Willi Research has received the Abbey S. Meyers Leadership Award as part of the 2026 NORD Rare Impact Awards for its Global PWS Registry research. We’re honored by NORD’s recognition and deeply grateful to the families who
    Smiling baby lying on a soft blanket, wearing a floral outfit and pink headband while holding a growth hormone injection pen.
    PWS Registry Data: Growth Hormone Use in People with PWS
    Growth hormone therapy (GHT) is a standard of care for individuals with Prader-Willi syndrome (PWS) from infancy through adolescence and is recommended for adults with PWS. Data collected through the Global PWS Registry helps us better understand growth hormone use
    Young child smiling while sitting in a small backyard splash pool with colorful floating toys
    When Might My Child Reach Milestones? A Look at Development in PWS
    Families affected by Prader-Willi syndrome (PWS) often have questions about their child’s development and what they can expect throughout their child’s journey. While every individual with PWS follows their own unique path, data collected through the Global PWS Registry helps
    Celebrating the Strengths of People with Prader-Willi Syndrome
    When people think about Prader-Willi syndrome (PWS), conversations often focus on the challenges. But just as important—and too often overlooked—are the strengths and positive attributes that define individuals with PWS. People with Prader-Willi syndrome are often described by caregivers as
    Global PWS Registry graphic titled
    PWS Registry Data: Anxiety In PWS
    Anxiousness is a common challenge for our loved ones with PWS. Within the Global PWS Registry, caregiver-reported anxiety is an issue for 61% of individuals ages 10-14, and rises to almost 75% for individuals 15 and older. Caregiver-reported data from
    PWS Registry Data: Dermatology
    When it comes to dermatological or skin issues in PWS, the first things that may come to mind are sensitivity to the sun due to fair skin and skin picking. However, there are a variety of additional skin-related concerns for
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    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah