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Foundation for Prader-Willi Blog | Family Conference

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FPWR 2026 Family Conference: Deep Dive Workshops

At this year's FPWR Family Conference, you'll find more than traditional presentations. Explore interactive workshops featuring expert guidance, practical strategies, and meaningful conversations with other families.
July 15, 2026 Read More

Topics: Parents, Family Conference

Adults With PWS: Aging and Health - What Families Should Know

Adults with Prader-Willi syndrome (PWS) can experience earlier-onset changes in health and daily functioning. During a 55‑minute presentation at the United in Hope PWS conference, Dr. Laura de Graaff (Erasmus MC, Rotterdam) discussed practical steps ...
September 17, 2025 Read More

Topics: Family Conference

Planning for the Future: Estate and Insurance Insights for Families

Planning for the future can feel overwhelming, but it’s essential for families of individuals with Prader-Willi Syndrome (PWS). At the 2024 FPWR Conference, two experts shared actionable insights into estate planning and insurance benefits, empowerin...
January 21, 2025 Read More

Topics: Parents, Family Conference

Navigating PWS: Stories, Strategies, and Insights from the FPWR Conference

The 2024 FPWR Conference opened with a powerful session featuring a panel of experts that left attendees inspired and better equipped to navigate the challenges of PWS. From addressing behavioral challenges to securing effective Individualized Educat...
January 8, 2025 Read More

Topics: Parents, Family Conference

United in Hope: 2025 Global Prader-Willi Syndrome Conference

We are excited to announce that the 2025 "United in Hope" conference will be held in collaboration with the International Prader-Willi Syndrome Organisation (IPWSO), the Prader-Willi Syndrome Association | USA (PWSA | USA), and the Foundation for Pra...
October 16, 2024 Read More

Topics: News, Family Conference

Select Sessions from our 2024 Research Symposium and Family Conference Now Available

We're excited to announce that select sessions from our recent PWS Research Symposium and Family Conference are now available to watch! This year’s event brought together leading experts, researchers, and families from around the world to explore the...
October 2, 2024 Read More

Topics: News, Family Conference

The Matesevac Family Welcomes You to Atlanta this September!

A special contribution by guest blogger Lisa Matesevac. Welcome to the ATL! We are thrilled that our city will host the annual Foundation for Prader-Willi Research Symposium and Family Conference in September 2024! Together with my family and the Geo...
August 6, 2024 Read More

Topics: Parents, Family Conference

FPWR 2024 Family Conference: Deep Dive Workshops

You won’t want to miss these speakers at the 2024 FPWR Family Conference this September in Atlanta, GA. This year's conference has something for every parent traveling this PWS and SYS journey. Attend interactive workshops designed to provide practic...
July 17, 2024 Read More

Topics: Parents, Children 0-3, Children 3-6, Family Conference

Early School Years — Ages 3-8 [2023 Conference Video]

In this 1 hour and 52-minute video, Dr. Anastasia Dimitropoulos of the PRETEND Program, Staci Zimmerman, and Cindy Szapacs discuss social strategies, IEPs, and behavior in the early school years for children with PWS.
June 5, 2024 Read More

Topics: ages: 4-7, Parents, Children 3-6, Children 6-12, Family Conference

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

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