Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    News
    Stories of Hope
    Family Conference
    PWS Registry
    Clinical Trials
    Clinical Issues
    Behavior & Mental Health
    Schaaf-Yang Syndrome
    Treatments
    Resource Development
    Endocrinology
    Hyperphagia
    Genetic Therapy
    reflecting-on-2024-a-year-of-progress-promise-for-the-pws-community
    Reflecting on 2024: A Year of Progress & Promise for the PWS Community
    As 2024 draws to a close, we at the Foundation for Prader-Willi Research (FPWR) are reflecting on a year filled with progress, promise, and hope. This year’s achievements wouldn’t have been possible without the incredible dedication of our community—researchers, families,
    Questionnaire Measures Hyperphagia in PWS Clinical Trials
    Measuring hyperphagia is essential to developing and evaluating treatments for Prader-Willi syndrome (PWS). But because hyperphagia involves complex food-related thoughts and behaviors, researchers need tools specifically designed to capture these experiences. In 2016, Zafgen, Inc. donated its Hyperphagia Questionnaire for
    FPWR Announces 2nd Round of 2024 Grants
    We are pleased to announce the recipients of our second round of grants for 2024, totaling $1,681,781 in awards, as part of the Foundation for Prader-Willi Research’s (FPWR) ongoing commitment to advancing research in Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome
    what-you-need-to-know-about-blood-clots-in-pws
    Blood Clots in PWS: Risk Factors, Signs & Symptoms
    Although rare overall, people with PWS have a higher risk for developing dangerous blood clots than the general population. A blood clot is a mass of blood that has changed from its liquid state into a semi-solid or gel-like form.
    2024 FPWR PWS/SYS Research Symposium Retrospective
    In September, we were honored to host our annual meeting of researchers, physicians, and pharmaceutical companies interested in Prader-Willi or Schaaf-Yang syndromes. This event is consistently invigorating as the leaders in PWS/SYS research not only share their latest results and
    Previous 12 13 14 15 16

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah