Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    Stories of Hope
    News
    Parents
    Family Conference
    Global PWS Registry
    Clinical Trials
    Schaaf-Yang Syndrome
    Treatments
    Behavior
    Sleep
    Advocacy
    Clinical Trials Opportunities
    Resource Development
    hopefull
    Endocrinology/Growth Hormone
    Mental Health
    Children 0-3
    Clinical Issues
    Hunger Satiety
    Hyperphagia
    Learning
    Research Blog
    Children 12-18
    Children 3-6
    Genetic Therapy
    Scoliosis
    Therapeutic Development
    Aging
    Blood Clots
    Children 6-12
    Executive Function
    Genetics and Imprinting
    Obesity and Energy Balance
    PWS Research
    Partners
    Trial Results
    VYKAT
    Video Gallery
    Volunteer
    cognition
    hormones
    hypogonadism
    interventions
    one small step
    skin picking
    trial endpoints

    Parents

    Dr. Roy, Dr. Shaheed, and Corrie Andrews smiling professionally.
    The First Two Years with PWS: Expert Guidance for Families
    The early years with Prader-Willi syndrome (PWS) come with a lot to learn. For families still finding their footing after a new diagnosis, questions about feeding, growth hormone, sleep, therapies, and specialist visits can come quickly — all while getting
    Built to Last: Celebrating One Small Step Legacy Hosts
    Behind every One Small Step is an unsung hero. Following up with one more sponsor. Filling prize baskets at the kitchen table. Wondering if anyone will actually show up. Arriving before sunrise to unload tables. Most people never see those
    Collage of attendees connecting at the FPWR Family Conference alongside a small-group workshop led by a speaker.
    FPWR 2026 Family Conference: Deep Dive Workshops
    At this year's FPWR Family Conference, you'll find more than traditional presentations. Explore interactive workshops featuring expert guidance, practical strategies, and meaningful conversations with other families. Behavior & Mental Health: Ages 5 and Up Behavioral and mental health challenges can
    How Two Moms Turned Fear Into Action Through One Small Step
    When Amy Reinmuller first considered hosting One Small Step Baton Rouge, the idea stayed in the “maybe someday” category for a long time. Fear kept getting in the way. “What if nobody comes?” she remembered thinking. “What if I can’t
    Featured image for the 2026 FPWR Family Conference New Parent Track featuring a family with a young child and text reading “New Parent Track – 2026 FPWR Family Conference – PHL26
    What New Parents Can Expect at the FPWR Family Conference
    The early years after a PWS diagnosis come with a lot of questions. The New Parent Track is designed to help you build knowledge, confidence, and connections with families who understand exactly where you are. What You'll Find in the
    Addison's Army Started with One Small Step
    The night before One Small Step Maryland, Jen Lieberman was worried nobody would come. By the next morning, her family was scrambling to find more raffle tickets. "My brother-in-law literally ran to Staples," Jake laughed. "We were looking around thinking,
    Parents Seek Answers, Leaders Step Forward
    In January 2008, The Dallas Morning News published an article titled “Parents Seek Answers.” At the center of the story was Kathryn McGhee, a mother navigating the daily realities of Prader-Willi syndrome while also helping shape a growing research movement
    Global Prader-Willi Syndrome Registry logo over a blue background with data charts.
    The Global PWS Registry: Turning Lived Experience Into Better Care
    Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated. In a recent episode of the PWS United podcast, members of FPWR’s research team shared how ten years of family participation in the Global PWS Registry
    1 2 3 4

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah