Latest News

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Heading 1

Filter

Exploring Type I and II Deletions in Prader-Willi: Cell-Level Insights

August 20, 2024

Most cases of Prader-Willi syndrome (PWS) are caused by a deletion on the paternally inherited copy of chromosome 15, but not all deletions are the same. Researchers recognize two main types—Type 1 (T1) and Type 2 (T2)—which differ in the

FDA Grants Rare Pediatric Disease Designation to CSTI-500

July 26, 2024

The FDA has granted Rare Pediatric Disease Designation (RPDD) to ConSynance Therapeutics' new investigational drug, CSTI-500 for the treatment of Prader-Willi Syndrome in children and adolescents. This special status is granted to drugs and biologics intended to treat rare diseases,

22 Years of Hope: Kathryn McGhee's Dedication to Finding PWS Treatments

July 10, 2024

Kathryn McGhee has been an active member of our PWS community for 22 years, participating in numerous letter-writing campaigns and PWS clinical trials and hosting over a dozen fundraisers for FPWR! As a proud mom to Hannah (who recently turned

Katie and Adam Larson: A Decade of Dedication to Finding Treatments for PWS

June 24, 2024

Since first tapping into our community 12 years ago, Katie and Adam Larson have been ready to do whatever it takes to find treatments and a brighter future for their son, Graham. From co-hosting One SMALL Step walks to throwing

Webinar: What You Can Expect if You Participate in TEMPO, a Phase 3 Trial of Pitolisant

June 18, 2024

If your loved one with PWS struggles with daytime sleepiness, you may be interested in learning more about TEMPO, a phase 3 study of Pitolisant, now enrolling volunteers with PWS ages 6 to 65 years old. This study will evaluate

Understand Drug Development for Rare Diseases: Free Online Series

June 18, 2024

Have you ever wanted to know more about the drug development process and how patients and patient organizations like FPWR can engage with and inform the process? The National Organization for Rare Diseases (NORD) has developed a free educational series

Why We Are HopeFULL for the Future of People with Prader-Willi Syndrome

June 13, 2024

Prader-Willi syndrome (PWS) is a complex genetic disorder with a range of challenging symptoms, including hyperphagia (excessive hunger), obesity, and behavioral issues. Despite these challenges, recent advancements in medical research and therapeutic developments offer substantial hope for individuals with PWS

Early School Years — Ages 3-8 [2023 Conference Video]

June 5, 2024

In this 1 hour and 52-minute video, Dr. Anastasia Dimitropoulos of the PRETEND Program, Staci Zimmerman, and Cindy Szapacs discuss social strategies, IEPs, and behavior in the early school years for children with PWS. Click below to watch the video.

FPWR Genome Study Insights: Caregiver Views on Pharmacogenomics for PWS

May 27, 2024

The FPWR Genome Study, full title “Whole Genome and RNA Sequencing Analysis in Prader-Willi Syndrome," is an ongoing whole genome sequencing study among 50 individuals with PWS. The goal of the study is to determine if genetic variants outside the

Previous 13 14 15 16 17

Older Articles

Subscribe to hope.

If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

Subscribe to FPWR News Updates

Heading 1