Most people with PWS are social and enjoy spending time with family and friends. However, making and keeping friends can be difficult for people with PWS. Because of food issues, people with PWS often need supervision and monitoring, which can make i...
Topics: Research
Researchers are making progress in evaluating the potential therapeutic benefit of oxytocin for PWS. Here, we review some of the most prominent research studies in this area and their implications for PWS.
Topics: Research
Attending a conference means being around people who get it—they understand the journey you have been on with your child, personally, and with the world. It’s like seeing your family when you attend the FPWR Family Conference. Everyone, whether a new...
Topics: News
This guest blog was contributed by Dr. Jessica Duis, Pediatric Geneticist at Vanderbilt University Medical Center and author of A Multidisciplinary Approach to the Clinical Management of Prader–Willi Syndrome. One of the most common questions I hear ...
Topics: Research
Saniona recently published a press release with an update on their Phase 2a study of Tesomet for Prader-Willi syndrome. A member of the PWS Clinical Trials Consortium, Saniona is working with FPWR, PWSA-USA, leading PWS experts and other industry par...
A special contribution by guest blogger Allison Shelton Allison shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
With the input of experts and parent advocates from the SYS community, a research plan has been developed to guide and accelerate SYS research over the next 3 years. The plan includes a brief overview of the ‘current state of research,' highlights cu...
