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FPWR Blog

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A new drug to build muscle?

Individuals with PWS have motor difficulties throughout life, with low muscle tone and decreased muscle mass. Growth hormone therapy is helpful in increasing muscle mass, but it does not completely normalize body composition.
August 10, 2010 Read More

Topics: Research

A Preliminary Analysis of the Phenomenology of Skin-Picking in Youth with PWS

Below is a special guest blog from Jessica Morgan, a graduate student working with Dr. Eric Storch at the University of South Florida. Their group has an interest in understanding skin picking (and other obsessive/compulsive behaviors) in PWS so that...
April 28, 2010 Read More

Topics: Research

What's for dinner? Mandometer anyone?

So, here's a different approach. A new study looks at the use of a computerized device in helping to modify eating behavior in typically developing obese adolescents.
March 30, 2010 Read More

Topics: Research

Long-Term Safety and Benefits of Growth Hormone Therapy for PWS

Several new reports on growth hormone (GH) therapy support the benefits of GH use in PWS, while continuing the trend of a reassuring safety profile.
January 28, 2010 Read More

Topics: Research

Seizure Disorder in Prader-Willi Syndrome

Although it's rarely mentioned in clinical descriptions of PWS, anyone who hangs around families with PWS knows that seizures seem to occur much more frequently in those with PWS than typical individuals. Even in cases where a seizure disorder is nev...
July 2, 2009 Read More

Topics: Research

Linking Learning with Neurodevelopmental Functioning - Final Report

This project was funded by the Foundation for Prader Willi Research in 2006 and conducted by Drs. Gregory Olley and Anne Wheeler and their team at the University of North Carolina, Chapel Hill (UNC), Center for Development and Learning. Dr. Wheeler i...
May 6, 2009 Read More

Topics: Research

Growth Hormone Therapy Does Not Worsen Scoliosis

The incidence of scoliosis in Prader-Willi syndrome is quite high (~30% in children under the age 10; up to ~80% in kids over the age of 10, compared to <3% in the general population). Because moderate to severe scoliosis can be associated with si...
April 7, 2009 Read More

Topics: Research

Adrenal Insufficiency and PWS

Several recent studies have begun to look more carefully at the causes of death in PWS, particularly in cases where death was sudden and/or unexpected. A review of 64 cases of death in children with PWS noted a high occurrence of respiratory infectio...
April 2, 2008 Read More

Topics: Research

Peptide YY and Obesity: A Promising New Examination

Obese individuals often have a deficiency in peptide YY (PYY), a hormone that is produced by endocrine "L" cells of the lower gastrointestinal tract, the stomach and the brainstem. Low levels of PYY may be a predisposing factor to the development of ...
March 23, 2008 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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