PWS Early Interventions: 5 Therapies for Prader-Willi Syndrome

pws-early-interventions-7-therapies-for-prader-willi-syndrome.pngThe time immediately following a diagnosis of PWS can be very difficult, and parents typically are dealing with an overwhelming amount of new information. It's important to take the time you need to process what is happening and connect with others for support. That said, early interventions should begin as soon as a diagnosis of PWS has been made. Research indicates early diagnosis and therapies may reduce the duration of tube feeding and prevent early obesity in Infants with PWS. Early intervention in children under age 3 years, particularly physical therapy, may improve muscle strength and encourage achievement of developmental milestones.

Physical, occupational, and speech therapies are recommended for infants with PWS.

Physical Therapy

Physical is helpful to improve balance, coordination, andstrength. Your physical therapist will work with your child to improve gross motor skills such as lifting his head, sitting, crawling, and walking.

Occupational Therapy

Occupational therapy primarily assists with fine motor skill development and hand control. Occupational therapists will also perform activities to help with sensory integration and may perform oral motor exercises to improve sucking strength in preparation for pre-speech.

Speech Therapy

Early assessment and intervention are critical to the development of functional communication. Parents are strongly encouraged to begin oral-motor therapy in infancy to assist with feeding and the acquisition of the oral-motor skills necessary for babbling and speech. If your child is receiving a diagnosis later in childhood, a speech and language assessment should be made as soon as the diagnosis is made. The Prader-Willi California Foundation provides an excellent brochure on speech and PWSbrochure on speech and PWS.

Hippotherapy

Hippotherapy is commonly recommended for children ages 2 and above. The horse’s rhythmic, repetitive movements work to improve muscle tone, balance, posture, coordination, strength, flexibility, and cognitive skills. The movements also generate responses that are similar to and essential for walking. In addition, adjusting to and accommodating for the horse’s movements increases sensorimotor integration. You can learn more at the American Hippotherapy Association website.

Infant Massage

Research shows infant massage is beneficial in improving blood circulation, aiding digestion, enhancing the development of the nervous system, stimulating neurological development, increasing alertness, and improving immune function. View a video demonstration of infant massage here.

For more information to help you in the days, weeks, and months following PWS diagnosis, download the ebook First Steps: A Parent’s Guide to Prader-Willi, written by parents for parents.

PWS First Steps Ebook CTA Blog

Topics: Research

Susan Hedstrom

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Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.

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