Top 10 Reasons to Attend the 2020 FPWR Family Conference

top-10-reasons-to-attend-the-2020-fpwr-family-conference-1The FPWR Family Conference takes place October 1-3, in Chicago, IL. Here are the top 10 reasons you need to be there!

10. Chicago!

Nightlife, live music, culture, and great food are all at your convenience! Shop and explore the Millennium Park and the Chicago Riverwalk; go on a tour of the city or visit the nearby zoo for family fun and outdoor recreation. The options are endless!

9. Empowerment

Having a child with PWS changes who we are. But that doesn’t mean we can’t rise stronger and more hopeful for a better future. Coming to an FPWR conference is a first step to taking control of your future with PWS.

8. Direct Access to Current Information About PWS 

Nowhere else in the world will you get to hear from experts such as Dr. Jessica Duis, Elizabeth Roof, Dr. Harold van Bosse and other leading PWS researchers and experts all in one place. Find out what groundbreaking research is being done in the PWS world, straight from the researchers themselves!

top-10-reasons-to-attend-the-2020-fpwr-family-conference-027. Meet the Experts

There are Q & A sessions after every presentation and plenty of opportunities to meet the physicians and researchers at the Welcome Reception Friday night, or over coffee and lunch breaks. You get the chance to ask your questions and get personalized advice for your loved one in an intimate setting.

6. Educate Your Loved Ones

Research is hard to understand sometimes. But, when you have the experts at your disposal, you can ask the questions you need and then educate everyone you know about up-to-date PWS treatments, clinical care, research and statistics. Also, don’t miss the Research Symposium Friday morning- it is free for parents!

Register for the 2020 Conference Now!

5. Make New Friends

There is simply no way to explain the feeling of being in a room full of people who “get it.” A room full of parents who have a child with Prader-Willi Syndrome. You have to be there to truly understand. Lifelong friendships are made at every conference.

4. Great Hotel Price & Location

You can enjoy the beautiful W Chicago Hotel City Center knowing you received an AMAZING room rate. The hotel is within walking distance to the conference space, Convene, great food, the riverwalk, and museums, and tons of great things to do in Chicago. Enjoy the PWS Welcome Reception on Friday night at the Convene with a cash bar and hors d'oeuvres.

3. Help Other Parents

Either you ARE a new parent or you HAVE BEEN a new parent. At some point we all need a little help navigating the world as a special needs parent. Attending a conference creates an environment to ask for help and equips you to help the next generation of PWS parents; so that nobody has to start this journey alone. 

top-10-reasons-to-attend-the-2020-fpwr-family-conference-32. Have Fun

We have a packed educational program, but before and after sessions, the FPWR family is known for being an uplifting, encouraging and downright fun group of people. After the Welcome Reception on Friday, you'll be ready to share a meal on Saturday with your new friends. Saturday evening enjoy the night out with a group of parents who are ready to dance the night away at the nearby nightlife or have a quiet conversation over drinks at the hotel bar. We guarantee the connections you make will last a lifetime. 

1. Get Involved

Have you ever wondered how to get involved with FPWR or want to be an advocate in your area for PWS? Attending a conference will get you connected to some of the most passionate PWS parents; all who welcome you with open arms to join our community and help change the world of PWS!

Register now during our St. Patrick’s Day Sale going on March 1-17. Prices are being cut from $225 (regular price) to $175*. After that, tickets will go up to their regular price. This is our biggest sale of the year, and you will not want to miss it! Learn more and register for the 2019 FPWR conference here!

Register for the 2020 Conference Now!

Topics: News

Melissa Demand


Melissa became involved with FPWR in 2014 after her son, Kemett, was diagnosed with PWS. That year she hosted her first One SMALL Step Walk which raised over $115,000 and earned herself the honor of hosting the FPWR conference in Austin, TX in 2015. Melissa has over 9 years of fundraising and development experience and a Masters in Social Work from The University of Texas with an emphasis on Community and Administrative Leadership. Melissa will be assisting with database management and administrative duties.