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Foundation for Prader-Willi Blog | Family Conference (3)

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Standards of Care Ages 10+ [2023 Conference Video]

In this one hour and 17-minutevideo, Dr. Theresa Strong and the FPWR research team explore recent research breakthroughs and emerging standards of care for PWS.
January 11, 2023 Read More

Topics: Research, Family Conference

Standards of Care for People with PWS [2022 Conference Video]

In this one-hour video, Dr. Diane Stafford, Pediatric Endocrinologist at Stanford University, discusses standards of care for patients with PWS across the age continuum, including medical needs, currently available medications, supplements, and behav...
December 15, 2022 Read More

Topics: Family Conference

Advancing Hope: New Therapies for PWS [2022 Conference Video]

In this 50‑minute video, Dr. Tony Holland, Dr. Lauren Schwartz, and Dr. Deepan Singh discuss two promising studies of therapies for Prader-Willi syndrome: Vagus Nerve Stimulation (VNS) and bright light therapy. The session includes Q&A from parti...
November 29, 2022 Read More

Topics: Research, Family Conference

2022 PWS Research Symposium and Family Conference

This September 29 - October 1, parents, caregivers and medical professionals from across the country will once again be coming together to connect, learn, and be inspired at the Foundation for Prader-Willi Research’s Annual Research Symposium and Fam...
August 6, 2022 Read More

Topics: Research, Parents, Learning, Family Conference

Top 10 Reasons to Attend the 2022 PWS Family Conference

Join us September 30-October 1 for our annual gathering of movers, shakers, thinkers, and doers at this year’s FPWR Family Conference! Here are the top 10 reasons you need to be there:
August 1, 2022 Read More

Topics: News, Family Conference

FPWR 2022 Conference Speakers Announced

You won’t want to miss these speakers at the 2022 FPWR Family Conference this September and October in Chicago, IL. Are you ready to join like-minded game-changers with direct access to the people, knowledge, and inspiration you need to help your chi...
July 19, 2022 Read More

Topics: News, Family Conference

Sleep Disorders and PWS [2021 CONFERENCE VIDEO]

In this 1 hour and 19‑minute video, Dr. Aaron Chidekel, a pediatric sleep specialist, and Cindy Szapacs, mom to a teenage son with PWS, discuss excessive daytime sleepiness and other symptoms and treatments for sleep disorders in people with PWS. The...
June 7, 2022 Read More

Topics: Research, Family Conference

Strategies for Managing Behavior in PWS [2021 CONFERENCE VIDEO]

In this one hour and 17‑minute video, Dr. Tony Holland, Emeritus Professor of Psychology, Cambridge University, discusses strategies for effective behavior management in PWS. The session includes Q&A from participants in the 2021 FPWR Virtual Con...
May 16, 2022 Read More

Topics: Research, Family Conference

Feeding Techniques for Children Ages 0-2 [2021 CONFERENCE VIDEO]

In this 59‑minute video, Sara Parker, MA, a pediatric speech pathologist, discusses feeding techniques for children with Prader‑Willi syndrome ages 0‑2. The session includes Q&A from participants in the 2021 FPWR Virtual Conference. Click below t...
April 26, 2022 Read More

Topics: Research, Family Conference

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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