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Family Conference (4)

DCCR Clinical Trial Update [2021 CONFERENCE VIDEO]

April 18, 2022

In this one hour and 3‑minute video, several investigators discuss a Phase 3 Clinical Trial of DCCR, a controlled release tablet of diazoxide choline, run by Soleno Therapeutics. The session includes Q&A from participants in the 2021 FPWR Virtual Conference.

Partnering for a Successful IEP [2021 CONFERENCE VIDEO]

April 1, 2022

In this 1 hour and 12‑minute video, Dr. Katy Chambers, former high school principal, teacher, and mom to Daniel who lives with PWS, shares her journey maneuvering the special educational system from both sides of the table. The session includes

Highlights from the PWS Research Symposium [2021 CONFERENCE VIDEO]

March 15, 2022

In this 1 hour and 2‑minute video, Dr. Theresa Strong, FWPR’s director of research programs, shares highlights from the 2021 PWS Research Symposium. The session includes Q&A from participants in the 2021 FPWR Virtual Conference. Click below to watch the

Carbetocin Clinical Trial Update [2021 CONFERENCE VIDEO]

March 4, 2022

In this 35‑minute video, Sara Cotter, founder and CEO of Levo Therapeutics, joins other members of the Levo team in describing the company’s mission of developing impactful therapies for the PWS community. The session includes Q&A from participants in the

Identifying Mental Health Issues in People with PWS [2021 CONFERENCE VIDEO]

February 9, 2022

In this one hour and 9‑minute video, Dr. Lauren Schwartz Roth, a clinical psychologist and parent to a young adult with PWS, explains how parents and caregivers can effectively assess and manage mental health issues if they arise in loved

Sensory Integration for Children with PWS [2021 CONFERENCE VIDEO]

February 3, 2022

In this 60‑minute video, Janice Agarwal, a Pediatric Physical Therapist, explains how children with PWS have decreased sensory awareness and how you can help your child with sensory integration. The session includes Q&A from participants in the 2021 FPWR Virtual

What's Happening In PWS Research? [2021 CONFERENCE VIDEO]

January 25, 2022

In this 67‑minute video, Dr. Theresa Strong and the FPWR Research Team share highlights of projects we are currently advancing. The session includes Q&A from participants in the 2021 FPWR Virtual Conference. Click below to watch the video. If you're

Standards of Care for Children and Adults with PWS [2021 CONFERENCE VIDEO]

December 20, 2021

In this 1-hour video, Dr. Jessica Duis, Clinical Geneticist from Children's Hospital Colorado explains standards of care for children and adults with PWS. The session includes Q&A from participants in the 2021 FPWR Virtual Conference. Click below to watch the

Standards of Care for Children and Adults with PWS

Standards of Care for Children Ages 0-2 With PWS [2021 CONFERENCE VIDEO]

December 14, 2021

In this 1-hour video, Dr. Jessica Duis, Clinical Geneticist from Children's Hospital Colorado explains standards of care for children ages 0-2 with PWS. The session includes Q&A from participants in the 2021 FPWR Virtual Conference. Click below to watch the

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