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    Research (23)

    mental-health-professions-release-10-pws-research-recommendations.jpg
    Mental Health Professionals Release 10 PWS Research Recommendations
    Mental health professionals have published 10 recommendations for Prader-Willi syndrome (PWS) research. These recommendations create urgency for further research and treatments to improve quality of life and increase independence for people with PWS. The recommendations are included below, from the
    Loss Of Magel2 Contributes To Muscle Weakness in PWS
    Muscle weakness (hypotonia) is often the most obvious first symptom in newborns with PWS. While hypotonia in infants is most severe, low muscle tone continues to limit endurance and reduce participation in daily activities in children and adults with PWS.
    Bearden Research Investigates Early Signs of Psychosis in PWS
    Behavior and mental health issues are an important part of Prader-Willi syndrome (PWS). In particular, one of the most challenging aspects for families to face is the onset of psychosis (i.e., mental illness characterized by symptoms, such as delusions or
    Social Communication: Its Role In Behavior & Cognitive Development In PWS
    In social communication, the ability to appropriately recognize and process facial expressions is critical to understanding others' emotional and mental state. People can often "read" emotions on someone's face, including happiness, sadness, fear, surprise and anger. Scientifcally, this is called
    Abnormal Sleep Patterns in PWS Are Focus of LaSalle's Research
    Abnormal sleep patterns in PWS make sleep disorders common for people with Prader-Willi syndrome. These are associated with central and obstructive apnea, disrupted sleep, and excessive daytime sleepiness. But why exactly do individuals with PWS have abnormal sleep patterns? Dr.
    Prader Willi Behavioral Issues May Be Tied to Low GABA Levels in Brain
    Adolescents and adults with PWS often struggle with temper outbursts, compulsive behaviors, and self-injurious behaviors such as skin-picking. These behavioral challenges impact the quality of life for those with PWS and for their families and caregivers. There are a number
    Mental Health in PWS – Mindfulness, Exercise May Help
    Staying mentally well can be a challenge for all of us, but is particularly difficult for those with PWS. While medications can be an important part of maintaining good mental health in PWS, we're always on the lookout for approaches
    new-crispr-gene-editing-options-focus-on-rna.jpg
    New CRISPR Gene Editing Options Focus on RNA
    If you pay attention to science 'buzz', you've probably heard of CRISPR technology. This technology allows scientists to precisely modify DNA sequences. First adapted for genome editing in 2013, use of CRISPR systems has exploded in research labs, allowing for
    How's mom doing?
    It’s not news to moms of children with PWS that ours is not an easy road. Our kids face medical problems, challenges in their schools, and often have behavioral issues that can be exhausting. Then there are the doctors’ appointments,
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    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah