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Foundation for Prader-Willi Blog | Research (34)

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Improving Social Functioning in PWS [VIDEO]

“People with PWS have a real need to actually connect with others and have relationships." This was one of the many valuable insights shared by Elizabeth Roof, Senior Research Specialist at Vanderbilt University, and other panelists addressing social...
November 21, 2016 Read More

Topics: Research

Sleep Issues in PWS: Presentation by Dr. Thomas Scammell [VIDEO]

Many individuals with PWS experience significant disruption of daily life as a result of sleep issues. Daytime sleepiness, abnormal REM sleep, narcolepsy, and cataplexy are common sleep-related symptoms of PWS, however their underlying cause is unkno...
November 3, 2016 Read More

Topics: Research

Roadmap for the Future: The PWS Research Plan 2017-2021

Prader-Willi syndrome is a complex genetic disorder affecting nearly every system in the body. A challenge with this level of complexity requires a well thought out strategy to overcome. The Foundation for Prader-Willi Research, with the input of com...
October 20, 2016 Read More

Topics: Research

Mental Health Professionals Release 10 PWS Research Recommendations

Mental health professionals have published 10 recommendations for Prader-Willi syndrome (PWS) research. These recommendations create urgency for further research and treatments to improve quality of life and increase independence for people with PWS....
October 13, 2016 Read More

Topics: Research

Developing Oligonucleotides To Rescue Missing SNORD115 In PWS [VIDEO]

Dr. Stefan Stamm has been actively involved in the PWS research community for a number of years. His group has received FPWR funding to explore the complex biology of SNORD115 and SNORD116 in PWS, as well as pursue ways to rescue the function of thes...
October 3, 2016 Read More

Topics: Research

Loss Of Magel2 Contributes To Muscle Weakness in PWS

Muscle weakness (hypotonia) is often the most obvious first symptom in newborns with PWS. While hypotonia in infants is most severe, low muscle tone continues to limit endurance and reduce participation in daily activities in children and adults with...
September 20, 2016 Read More

Topics: Research

Real-World Data, Real-World Evidence, and PWS

"Real-world data" and "real-world evidence" (RWD and RWE) are hot buzz words in the fields of healthcare and research. This is an emerging area of data acquisition and analysis, with the potential to transform clinical research and patient care. It i...
September 8, 2016 Read More

Topics: Research

Bearden Research Investigates Early Signs of Psychosis in PWS

Behavior and mental health issues are an important part of Prader-Willi syndrome (PWS). In particular, one of the most challenging aspects for families to face is the onset of psychosis (i.e., mental illness characterized by symptoms, such as delusio...
September 5, 2016 Read More

Topics: Research

Social Communication: Its Role In Behavior & Cognitive Development In PWS

In social communication, the ability to appropriately recognize and process facial expressions is critical to understanding others' emotional and mental state. People can often "read" emotions on someone's face, including happiness, sadness, fear, su...
August 29, 2016 Read More

Topics: Research

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The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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