Topics: Stories of Hope
A special contribution by guest blogger Jennifer Hannabass Jennifer shared her story via our Stories of Hope questionnaire.
A special contribution by guest blogger Courtney Smith A letter to Prader-Willi siblings: Recently, a woman asked if I would be willing to speak with her teenage daughter, who was struggling with having a brother with Prader-Willi Syndrome. Of course...
Topics: Stories of Hope
A special contribution by guest blogger Rosemarie Rouse Rosemarie shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
A special contribution by guest blogger Anne Fricke When Freya was little, her parents weren’t sure what her future would hold. At two and a half, she was still not walking well, and every milestone felt like a mountain to climb. Today, at almost fiv...
Topics: Stories of Hope
A special contribution by guest blogger Elizabeth DeSimone Elizabeth shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
A special contribution by guest blogger Natalie Neto Natalie shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
Our FPWR community has no shortage of amazing fathers. We honor your selfless commitment to supporting your children and helping to ensure a brighter future for them. We asked Josh Gilliam, dad to Jackson, to share his FPWR story in honor of all dads...
Topics: Stories of Hope
We asked parents how they became involved with FPWR. This video shares their responses.
Topics: Stories of Hope, Research






