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Foundation for Prader-Willi Blog | Stories of Hope (10)

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My Child is My Inspiration: If He Can Do It, So Can I

A special contribution by guest blogger Karina O'brien How has your child exceeded your expectations? When we received Noel's diagnosis, we were told he wouldn't be walking before his 5th birthday and would be NG fed until the age of 2. Noel is almos...
December 30, 2016 Read More

Topics: Stories of Hope

I Learned from My Daughter That Life is About Love

A special contribution by guest blogger Chelsea Balumas How has your child exceeded your expectations? Sienna is so strong. She is such a fighter, and she just keeps surprising us with her strides in her development. She was our first child so we don...
December 23, 2016 Read More

Topics: Stories of Hope

Look for What is Good, Not What is Wrong

A special contribution by guest blogger Jeanne Huffman Jeanne shared her story via our Stories of Hope questionnaire.
December 16, 2016 Read More

Topics: Stories of Hope

My Son Is More Than PWS: He Is A Miracle

A special contribution by guest blogger Heather Osterman How has your child exceeded your expectations? When Max was born, our diagnosis was missed. We just lived with trying to help Max with his challenges, not really understanding what was happenin...
December 9, 2016 Read More

Topics: Stories of Hope

Believe in Yourself and Believe in Your Child

A special contribution by guest blogger Lisa Miller What would you say to a parent whose child has recently been diagnosed with PWS? Our son is 5 now, but I remember the dark diagnosis days so well. The first year is the hardest, but it gets easier. ...
December 2, 2016 Read More

Topics: Stories of Hope

Your Child Can Do Anything! Don't Limit Them

A special contribution by guest blogger Jennifer Hannabass Jennifer shared her story via our Stories of Hope questionnaire.
November 25, 2016 Read More

Topics: Stories of Hope

It's Not Normal, It's Better: A Letter to Prader-Willi Siblings

A special contribution by guest blogger Courtney Smith A letter to Prader-Willi siblings: Recently, a woman asked if I would be willing to speak with her teenage daughter, who was struggling with having a brother with Prader-Willi Syndrome. Of course...
November 23, 2016 Read More

Topics: Stories of Hope

Parents of Children With Special Needs: We're Unstoppable!

A special contribution by guest blogger Rosemarie Rouse Rosemarie shared her story via our Stories of Hope questionnaire.
November 17, 2016 Read More

Topics: Stories of Hope

She's Shown Us Our Own Strength, Determination, Love and Acceptance

A special contribution by guest blogger Anne Fricke When Freya was little, her parents weren’t sure what her future would hold. At two and a half, she was still not walking well, and every milestone felt like a mountain to climb. Today, at almost fiv...
November 10, 2016 Read More

Topics: Stories of Hope

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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