Foundation for Prader-Willi Blog | Stories of Hope (10)

Believe in Yourself and Believe in Your Child

A special contribution by guest blogger Lisa Miller What would you say to a parent whose child has recently been diagnosed with PWS? Our son is 5 now, but I remember the dark diagnosis days so well. The first year is the hardest, but it gets easier. ...

December 2, 2016 Read More

Topics: Stories of Hope

Your Child Can Do Anything! Don't Limit Them

A special contribution by guest blogger Jennifer Hannabass Jennifer shared her story via our Stories of Hope questionnaire.

November 25, 2016 Read More

Topics: Stories of Hope

It's Not Normal, It's Better: A Letter to Prader-Willi Siblings

A special contribution by guest blogger Courtney Smith A letter to Prader-Willi siblings: Recently, a woman asked if I would be willing to speak with her teenage daughter, who was struggling with having a brother with Prader-Willi Syndrome. Of course...

November 23, 2016 Read More

Topics: Stories of Hope

Parents of Children With Special Needs: We're Unstoppable!

A special contribution by guest blogger Rosemarie Rouse Rosemarie shared her story via our Stories of Hope questionnaire.

November 17, 2016 Read More

Topics: Stories of Hope

She's Shown Us Our Own Strength, Determination, Love and Acceptance

A special contribution by guest blogger Anne Fricke When Freya was little, her parents weren’t sure what her future would hold. At two and a half, she was still not walking well, and every milestone felt like a mountain to climb. Today, at almost fiv...

November 10, 2016 Read More

Topics: Stories of Hope

Our Son Makes Everyone He Meets Feel Special

A special contribution by guest blogger Elizabeth DeSimone Elizabeth shared her story via our Stories of Hope questionnaire.

October 27, 2016 Read More

Topics: Stories of Hope

My Son Enriches My Life In Every Way

A special contribution by guest blogger Natalie Neto Natalie shared her story via our Stories of Hope questionnaire.

October 24, 2016 Read More

Topics: Stories of Hope

A Father's Biggest Dream: A Fulfilling, Independent Life for His Son

Our FPWR community has no shortage of amazing fathers. We honor your selfless commitment to supporting your children and helping to ensure a brighter future for them. We asked Josh Gilliam, dad to Jackson, to share his FPWR story in honor of all dads...

June 19, 2016 Read More

Topics: Stories of Hope