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"I became involved with FPWR when our son Dean was just an infant. We wanted to align ourselves with other families who not only knew what we were experiencing, but who would be proactive and dedicated to advancements that would improve the lives of our kids with PWS. When I met the dynamic and kind members of FPWR, I knew we'd found our family."

Ali Shenk Mom to Dean, FPWR Volunteer March 5, 2014

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"We chose to become involved with FPWR because of the organization's dedication to quality research. Our greatest hope for our daughter's life is that she live an independent life. The promise and hope that the outstanding researchers, doctors, and other scientific professionals affiliated with FPWR offer is unmatched."

Dana Capobianco Volunteer February 27, 2014

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"I though it was fun to meet another girl with PWS. We hung out the whole and became good friends. It will be interesting to see if the drug can help me & me friends. It wasn't too hard, just a nasal spray before meals."

Emma Roth Oxytocin Study Participant February 27, 2014