A special contribution by One Small Step host Lisa Matesevac
As we embark on hosting our 5th One SMALL Step event, I stop and think how this all got started for our family. Like most families, we are VERY busy. At different times, we are EXTRA busy.
When our son, Evan, was born in 2006 my husband and I had different perspectives on how to manage his future. Being in the medical field, I was certain with enough research I could find the best specialists, devour mountains of research and make a plan of care to ensure his best outcomes. My husband, Michael, was determined to make his quality of life the biggest priority. Laughing, playing, and enjoying family activities was his center of focus. Together we knew we had to be impactful on the PWS community as a whole. We both passionately believed research was the future and we cultivated hope from our visits to specialists and by surrounding ourselves with a local community of families like ours.