A special contribution by One Small Step host Bailey Beasley
We had just landed after being care flighted to a large children’s hospital. We had been in the NICU in our hometown for two weeks with undiagnosed low tone and poor feeding. Now, our Catherine was fighting for her life against bacterial spinal meningitis and the neonatologist was telling me that if she survived there was worse news. The next morning we receive a preliminary diagnosis: Prader-Willi Syndrome. The doctor listed all of the problems our precious baby would face and when she explained the hunger I lost it. It sounded like a life sentence of misery. Would my baby ever be happy?
Topics: Stories of Hope