A special contribution by Lindsey Larson, Host of Live Life Full Lewistown, IL
Being a first time mom is hard. Having triplets makes it even more challenging. Add to that a rare diagnosis, and it’s ... well, interesting is the only word that I can find at the moment.
We had anticipated NICU time with the arrival of triplets. I had already done the research on various medical problems that could happen at various gestational ages. I felt prepared, but anxious because who knows what could really happen. The research I had done managed to give me a little bit of comfort. We made it to 31 weeks, which is about average for triplets. Josh and I were overcome with joy when we welcomed Hannah, Elliot, and Gwendolyn into the world. We couldn’t wait to shower them with love. After a few days of struggling significantly with breathing, low muscle tone and overall alertness, one of our babies was referred for genetic testing. This was something I hadn’t prepared myself for. This was out of my research scope. Panic set in. As we waited for results, I did the best I could to take care of our three babies but I was a wreck. Bursting into tears was almost as scheduled as pumping sessions and feedings. A Prader Willi Syndrome diagnosis was confirmed for our son, Elliot, the day after Thanksgiving in 2014.