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Foundation for Prader-Willi Blog | Stories of Hope (2)

Two Moms Harvest Hope With 5K for PWS Research

While most of us spend Thanksgiving Day, relaxing, watching football or entertaining family, Rachael Fischer and Julie Foge rise before the sun to host the Harvesting Hope 5K run.  Since 2015 these two amazing, determined women have hosted this famil...

Topics: Stories of Hope

Aaron Dunn and Family: Hugging Our Way to a 'Hopefull' Future

A special contribution by Amanda Dunn, Host of HopeFull: Funding a Cure for Prader-Willi Syndrome, Cincinnati, OH For our 5-year-old son Aaron, it all starts with a hug. Not just any hug. He has a signature, enthusiastic hug. It’s clear just how capa...

Topics: Stories of Hope

Our Challenges Are Opportunities To Be Better People, Says PWS Mom

A special contribution by guest blogger Laura Achlabach Laura shared her story via our Stories of Hope questionnaire.

Topics: Stories of Hope

'My Life Was Enriched By Having a Sibling With PWS'

A special contribution by guest blogger Deb Cooper Deb shared her story via our Stories of Hope questionnaire.

Topics: Stories of Hope

Uncle Paul Cycles America to Build Awareness of PWS

Paul Golub’s 30th anniversary working for Walmart in Athens, GA, was just around the corner, when his upper management approached him and asked what he would like to do to celebrate the occasion. After spending some time thinking about it, he remembe...

Topics: Stories of Hope

Camaraderie & Joy : Walking in Washington, DC

I recently had the joy of attending the One SMALL Step walk in Washington, D.C. on June 1, 2019.  Being that I am involved daily in the One SMALL Step community, often helping in the background with technology, logistics, communications and coaching,...

Topics: Stories of Hope

Two Silver Medals: A Child's Achievement Inspires Strength and Hope

A special contribution by guest blogger Allison Shelton Allison shared her story via our Stories of Hope questionnaire.

Topics: Stories of Hope

My Son Can Do Anything He Sets His Mind To

A special contribution by guest blogger Marissa Marinan Marissa shared her story via our Stories of Hope questionnaire.

Topics: Stories of Hope

From the CEO's Desk: Together We Can Make Cutting-Edge PWS Research Possible

As my second month in my new role as FPWR's CEO concludes, I would like to reflect on some of my early observations and experiences with this truly incredible Prader-Willi community.  During the short time I've been in this role, I've met or spoken w...

Topics: Stories of Hope

PWS Mom's Courage Grows as the Story of Her Daughter Unfolds

A special contribution by One Small Step host Bailey Beasley “Something came back on the microarray.” We had just landed after being care flighted to a large children’s hospital. We had been in the NICU in our hometown for two weeks with undiagnosed ...

Topics: Stories of Hope