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FPWR Blog

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FPWR's Clinical Care Program for PWS: Priya Balasubramanian [VIDEO]

This blog contains excerpts from the Clinical Care Program for PWS Overview presented by research team member Priya Balasubramanian at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below. In case you ...
October 31, 2017 Read More

Topics: Research

Taking Charge and Changing the Futures of Our Children With PWS

A special contribution by One Small Step host Lisa Matesevac As we embark on hosting our 5th One SMALL Step event, I stop and think how this all got started for our family. Like most families, we are VERY busy. At different times, we are EXTRA busy. ...
October 27, 2017 Read More

Topics: Stories of Hope

Studies Show Benefits Of Growth Hormone Therapy For Adults With PWS

Children with PWS typically have growth hormone deficiency (GHD), and treating them with growth hormone has been shown to have beneficial effects on growth, body composition, motor function, and possibly cognitive development.
October 25, 2017 Read More

Topics: Research

FPWR Five-Year Research Plan: Dr. Nathalie Kayadjanian [VIDEO]

This blog contains excerpts from the FPWR Five-Year Research Plan Overview presented by research team member Nathalie Kayadjanian at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below. In case you do...
October 19, 2017 Read More

Topics: Research

Improving Social Skills In PWS: Elizabeth Roof [VIDEO]

This blog contains excerpts from Improving Social Skills In PWS, a presentation given by Elizabeth Roof at the FPWR 2017 conference. Her presentation of just over an hour covered two main topics: the behavioral phenotype of PWS and an online social s...
October 16, 2017 Read More

Topics: Research

The FPWR Grant Program: An Overview [VIDEO]

This blog provides a brief summary of the FPWR Grant Program Overview presentation given by research team member Theresa Strong at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below. In case you don'...
October 13, 2017 Read More

Topics: Research

How Schaaf-Yang Syndrome and PWS Are Related [VIDEO]

This blog provides a brief summary of the FPWR 2017 conference presentation about the ways in which Schaaf-Yang syndrome and Prader-Willi syndrome are related. The talk was presented by Drs. Christian Schaaf, Ryan Potts and Rachel Wevrick. You can wa...
October 11, 2017 Read More

Topics: Research, SYS

Total Hip and Knee Arthroplasty In PWS: Van Bosse Research

Issues with bone development and structure are very common in individuals with Prader-Willi syndrome (PWS). While most people in the PWS community are familiar with issues spinal issues, in particular scoliosis, people with PWS are also at higher ris...
October 9, 2017 Read More

Topics: Research

Bringing PWS Caregiver Perspectives Into the Development of Therapies

The Prader-Willi Syndrome Clinical Trials Consortium (PWS-CTC) was created in 2015 to address challenges and accelerate clinical trials for PWS. Key challenges include better understanding the progression of the disease (or natural history), developi...
October 4, 2017 Read More

Topics: Research

The PWS Registry: How It Can Help You [VIDEO]

This blog provides a brief summary of the PWS Registry presentation by research team member Jessica Bohonowych at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below. In case you don't have time to wa...
October 3, 2017 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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