Latest News

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Heading 1

Filter

FPWR

The Global PWS Registry: Turning Lived Experience Into Better Care

February 24, 2026

Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated. In a recent episode of the PWS United podcast, members of FPWR’s research team shared how ten years of family participation in the Global PWS Registry

Why I Will Always Celebrate the Beauty of My Son’s Rareness

February 18, 2026

A Rare Disease Day Tribute by Rebecca McWilliams, Mom to Kieran In my wildest dreams, I never thought this day would hold such profound meaning for me. Yet when your beautiful child is born and swiftly diagnosed with a disorder

Anxiety and Repetitive Behaviors in PWS: Understanding the Cycle and Ways to Help

February 4, 2026

This blog is based on the presentation “Managing Repetitive Behaviors & Improving Motivation,” given by Elizabeth Roof. We have all heard the classic riddle: which came first, the chicken or the egg? When it comes to anxiety and repetitive behaviors

The FPWR Therapeutic Accelerator Program: Bridging Research and Development

January 26, 2026

While much of FPWR’s work starts with discovery research, our mission extends across the full drug development pathway, supporting progress from foundational science all the way to potential treatments for Prader-Willi syndrome (PWS). Discovery research is where scientists ask the

The PWS Clinical Investigation Collaborative (PWS-CLIC): Advancing Care for Your Loved One with PWS

The PWS Clinical Investigation Collaborative (PWS-CLIC): Advancing Care for Your Loved Ones

January 22, 2026

If your loved one has Prader-Willi syndrome (PWS), you know how important expert medical care is to managing the complexities of the condition. The good news is that a dedicated group of doctors has partnered with FPWR to create a

Modafinil and Daytime Sleepiness in Prader-Willi Syndrome

January 15, 2026

Excessive daytime sleepiness (EDS) is one of those symptoms of Prader-Willi syndrome (PWS) that often does not get the attention it deserves. EDS can profoundly undermine success in older children and adults with PWS. It is hard to learn anything

Pivotal Study Results of VYKAT™ XR Published

January 12, 2026

Soleno Therapeutics has published results from its pivotal Phase 3 clinical study of VYKAT™ XR (diazoxide choline extended-release tablets, DCCR) in The Journal of Clinical Endocrinology and Metabolism, a peer-reviewed journal for endocrine and metabolic research. The publication reports findings

Your 2025 Impact: FPWR Fundraising Wrapped

January 9, 2026

Every breakthrough, every milestone, and every step forward in 2025 had one thing in common: our community. Because supporters like you showed up. You shared your story. You asked others to stand with you. And it mattered. Here are just

Global PWS Registry 2.0 Launches with New VYKAT Module

January 8, 2026

The Global PWS Registry is powered by the dedication of patients and families who share their PWS experiences. Each piece of data collected helps unlock insights that fuel scientific discoveries and treatment breakthroughs. Registry data has already powered several important

Previous 2 3 4 5 6

Older Articles

Subscribe to hope.

If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

Subscribe to FPWR News Updates

Heading 1