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    FPWR
    Are GLP-1s Safe and Effective for People with PWS?
    You have probably heard of GLP-1 receptor agonists (GLP-1s). You may even know someone who has successfully lost weight using one of these popular medications. But what about their safety and effectiveness for people with Prader-Willi syndrome (PWS)? GLP-1s are
    Recent Publications Explore Pitolisant as a Treatment for Daytime Sleepiness in PWS
    Pitolisant for Daytime Sleepiness in PWS: New Research Findings
    Families and caregivers in the Prader-Willi syndrome (PWS) community whose loved one experiences excessive daytime sleepiness (EDS) know just how challenging it can be in daily life. Data from the Global PWS Registry show that 55% of participants experience significant
    Making Space for Caregiver Well-Being
    Self-Care for Caregivers: Your Well-Being Matters
    Caring for a child or adult with Prader-Willi syndrome (PWS) often means juggling medical appointments, behavior plans, daily routines, and the emotional ups and downs that come with them. Too often, caregivers put their own needs last — not because
    Reflecting on 2025 - Progress and Hope for the PWS Community
    Reflecting on 2025: A Year of Breakthroughs, Milestones, and Momentum
    As we wrap up 2025, we’re celebrating a year shaped by real progress… scientific breakthroughs, new treatment pathways, and meaningful improvements in care for people with Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS). Every step forward this year was fueled
    Managing Behavior and Flexibility in PWS: Expert Strategies
    Behavioral challenges are one of the most complex parts of Prader-Willi syndrome (PWS). Anxiety, rigidity, difficulty with transitions, and emotional overwhelm can affect daily life at home, at school, and in the community. Families often ask: Will treating hyperphagia improve
    Caregiver Perspectives: Insights on the COMPASS-PWS Trial
    Background In response to Acadia Pharmaceuticals’ announcement that the COMPASS-PWS Phase 3 trial of intranasal carbetocin did not meet its primary or secondary endpoints and would not advance further, the Foundation for Prader-Willi Research (FPWR) convened a patient forum to
    Endocrine Care for Children with Prader-Willi Syndrome: 2025 Conference Insights
    Endocrine Care for Children with Prader-Willi Syndrome: 2025 Conference Insights
    Understanding the endocrine system is essential for managing Prader-Willi syndrome (PWS). From infancy through adulthood, hormone-related challenges shape growth, development, metabolism, and overall health. In this 2025 FPWR Conference presentation, Dr. Jennifer Miller, one of the world’s leading experts in
    2025 Winners
    Artist of the Year 2025 Winners: Celebrating Creativity and Hope
    A special blog contribution from our 2025 FPWR Art Auction Participants. Our 2025 Artist of the Year competition was a tremendous success, raising more than $25,000 to advance Prader-Willi and Schaaf-Yang syndrome research! We are deeply grateful to every extraordinary
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    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah