FPWR is dedicated to advancing research and accelerating the development of safe and effective treatments for people with Prader-Willi syndrome (PWS). While significant unmet needs remain, there are several therapies—both established and emerging—tha...
They’re parents, siblings, friends, and advocates, and this November, they’ll take on 26.2 miles together for a cause close to their hearts. Meet Team FPWR, a passionate team of athletes raising awareness and accelerating research for Prader-Willi sy...
Topics: Stories of Hope, PWS People
Soleno Therapeutics is committing up to $5 million to accelerate progress toward a cure for Prader-Willi syndrome by funding groundbreaking genetic research.
Families of children with Prader-Willi syndrome (PWS), your participation has the power to make a real difference—not only for your own child, but for the PWS community at large. Below are two research studies currently recruiting through the Neurode...
Ready to put purpose in your steps? The Harvesting Hope Distance Challenge is back starting October 16! Whether you walk, run, or waddle, every step funds critical research for Prader-Willi and Schaaf-Yang syndromes. And the best part? Thanks to a ge...
Topics: News
We are saddened to share disappointing news from Acadia Pharmaceuticals. The Phase 3 COMPASS clinical trial evaluating intranasal carbetocin (ACP-101) in individuals with PWS did not meet its primary endpoint of reducing hyperphagia. The study also s...
Adults with Prader-Willi syndrome (PWS) can experience earlier-onset changes in health and daily functioning. During a 55‑minute presentation at the United in Hope PWS conference, Dr. Laura de Graaff (Erasmus MC, Rotterdam) discussed practical steps ...
Topics: Adults
Thinking about fundraising for PWS research but not sure where to start? You’re in good company! These 10 parents all started in the same place—unsure, maybe even a little intimidated. But they took the leap. Not because it was easy, but because they...
Topics: Stories of Hope
FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits, while others can be completed remotely. Some trials are testing new drugs, while others are intervention (...
Topics: Research
