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Foundation for Prader-Willi Blog | Learning

Understand Drug Development for Rare Diseases: Free Online Series

Have you ever wanted to know more about the drug development process and how patients and patient organizations like FPWR can engage with and inform the process? The National Organization for Rare Diseases (NORD) has developed a free educational seri...

Topics: Parents, Learning

2023 PWS Research Symposium - Sharing Progress, Fostering Collaborations

One of the most important roles FPWR serves is that of a ‘convener’, bringing together those with an interest in advancing the science of PWS, and the care of those living with PWS. On Oct 5-6, 2023, FPWR held its annual PWS Research Symposium – our ...

Topics: Research, Learning

2022 PWS Research Symposium and Family Conference

This September 29 - October 1, parents, caregivers and medical professionals from across the country will once again be coming together to connect, learn, and be inspired at the Foundation for Prader-Willi Research’s Annual Research Symposium and Fam...

Topics: Research, Parents, Learning