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Clinical Issues (2)

New research brings hope for treating the sleep challenges faced by children with PWS and SYS.

Can We Treat Circadian Rhythm Disruption in PWS? New Research Offers Hope

May 7, 2025

Human beings have adapted to our planet's 24-hour days. The body goes through daily cycles that affect things like metabolism, physical functions, and mood—these 24-hour cycles are called the circadian rhythm. What you may not know is that this adaptation

School Interrupted: Three Families Share their Experiences with PWS and Excessive Daytime Sleepiness at School

March 10, 2025

Harmony Biosciences recently interviewed three families about their experiences with Prader-Willi syndrome (PWS), excessive daytime sleepiness, and school. For some children living with PWS and excessive daytime sleepiness (EDS), settling into the school year can be a challenge. In fact,

what-you-need-to-know-about-blood-clots-in-pws

Blood Clots in PWS: Risk Factors, Signs & Symptoms

November 8, 2024

Although rare overall, people with PWS have a higher risk for developing dangerous blood clots than the general population. A blood clot is a mass of blood that has changed from its liquid state into a semi-solid or gel-like form.

Presentations and Management of Sleep Disorders in PWS [2023 Conference Video]

December 20, 2023

In this 1 hour and 2‑minute video, Dr. Jessica Duis, an Associate Professor of Pediatrics and Genetics at Children’s Hospital Colorado, University of Colorado, will highlight presentations of sleep disorders in PWS, diagnostic evaluation, and treatment considerations. Click below to

Sleep Apnea in People with PWS

October 17, 2022

Is your loved one getting a good night’s sleep? Sleep apnea is a major concern for people with Prader-Willi syndrome, affecting as many as 70% of all participants in the Global PWS Registry. This condition makes it difficult for people

SUMMIT SHEDS LIGHT ON IMPACT OF SLEEP DISRUPTION IN RARE DISEASES

March 19, 2021

Harmony Biosciences has published a white paper sharing outcomes from a Summit on Sleep Disruption the company hosted in December 2020. For the first time, this summit convened a diverse group of people living with rare diseases, caregivers and leaders

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