Foundation for Prader-Willi Blog | Research Blog

Science Fireside Chat (Q & A): [2018 Conference Video]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also watch the full set of conference videos on YouTube.

Topics: Research Blog

Schaaf-Yang Syndrome: What Do We Know? [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also watch the full set of conference videos on YouTube.

Topics: Research Blog

PWS Research Symposium Highlights [2018 Conference Video]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. If you don't have time to watch the full video, we've included a full transcript of the presentation below. You can also watch the full set of conference videos on YouTube.

Topics: Research Blog

New Investigational Drugs for PWS Offer Hope [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also watch the full set of conference videos on YouTube.

Topics: Research Blog

Using Games To Reduce Resistance To Change In PWS [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also watch the full set of conference videos on YouTube.

Topics: Research Blog

PWS Behavior Panel Shares Helpful Findings [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also watch the full set of conference videos on YouTube.

Topics: Research Blog

Town Hall Highlights PWS Research Achievements [2018 CONFERENCE VIDEO]

This blog is based on the Research Town Hall presented by the FPWR Research team at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've summarized each presentation below.

Topics: Research Blog

World’s Largest Newborn Screening Study for Four Rare Disorders

The Foundation for Prader-Willi Research and the Angelman Syndrome Foundation are funding the world’s largest newborn screening study for four rare genetic disorders: Angelman, Prader-Willi, Fragile X and Dup15q syndromes. The Victorian Medical Research Acceleration Fund this year also contributed $100,000 toward the project.

Topics: Research Blog

FPWR-Group-CTA-1-Donate
FPWR-CTA-2-Fundraise
FPWR-CTA-3-Participate-Clinical-Trial