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Foundation for Prader-Willi Blog | Research (27)

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Results of Beloranib Clinical Trial In PWS Published

The results of Zafgen's phase 3 study evaluating the use of the drug beloranib to curb hunger and induce weight loss in individuals with PWS has been published. The study was conducted by McCandless, et al; an abstract is here. Those familiar with th...
September 15, 2017 Read More

Topics: Research

Scientific Day 2017: PWS Science Highlights & Abstracts

FPWR’s 2017 Scientific Day was held in conjunction with the FPWR annual conference on Thursday, August 24th in Indianapolis, Indiana. Approximately 75 people attended, including scientists, families and professionals from the pharmaceutical industry....
September 11, 2017 Read More

Topics: Research

Uridine: A New Player in Appetite Regulation

New research has revealed that a molecule called uridine plays a role in appetite regulation. This discovery could pave the way for potential new targets to control appetite and obesity.
September 8, 2017 Read More

Topics: Research

Recovering the Maternal 15th Chromosome Gene: Lalande's PWS Research

Prader-Willi Syndrome (PWS) most commonly results when a set of key genes are missing on the paternal 15th chromosome (deletion) — or else when the paternal chromosome has been entirely replaced by a maternal copy (uniparental disomy, UPD). One of th...
August 24, 2017 Read More

Topics: Research

Altered Link In Brain Regions Could Play Role In PWS Hyperphagia

As with many neurodevelopmental disorders, individuals with PWS often struggle with developmental delays and impaired cognition. Within the Global PWS Registry, 75% of participants who have had IQ testing scored with some level of intellectual disabi...
August 22, 2017 Read More

Topics: Research

Endocannabinoids As a Potential Therapy for Hyperphagia in PWS

The mechanisms in the nervous system that control appetite and satiation are complex. And the dysfunctions in those mechanisms that lead to hyperphagia and obesity in people with PWS are likewise complex and unclear. Yet, several hypothalamic appetit...
August 16, 2017 Read More

Topics: Research

Orthopedic Issues and Prader-Willi Syndrome: Q&A With Dr. van Bosse

Like many medical providers, Dr. Harold van Bosse came to specialize on Prader-Willi Syndrome (PWS) by happenstance. In the late 90s, a pediatric patient with PWS came under his care for treatment of scoliosis. At the time, not much was known about o...
August 14, 2017 Read More

Topics: Research

Studies Show PWS Caregiver Stress Can And Should Be Addressed

Parenting a child with special needs can be full of wonderful unexpected moments of joy such as seeing your child accomplish a difficult task or witnessing him or her make progress in therapies after months of hard work. These are unique and special ...
August 9, 2017 Read More

Topics: Research

Feeding Challenges and PWS: Q&A With Speech Pathologist Sara Parker

Food, hunger, mealtimes, eating — these are all important issues for people with PWS and their families. Sara Parker knows all about feeding challenges and PWS. She's a speech pathologist who specializes in pediatric feeding and has spent more than t...
August 8, 2017 Read More

Topics: News, Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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