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Foundation for Prader-Willi Blog | Research (26)

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PWS Places High Burden on Caregivers, New Publication Reports

PWS places a high burden on caregivers, impacting many aspects of their lives, according to a new publication in PLOS. The publication, High Levels of Caregiver Burden In Prader-Willi Syndrome, is the first stemming from the work of the PWS Clinical ...
March 29, 2018 Read More

Topics: Research

Hip Dysplasia in PWS May Be More Common Than Thought, Study Suggests

Many people with PWS have at least one orthopedic (bone/muscle) problem. A recent paper examines the how often hip dysplasia occurs in children with PWS (spoiler alert — it may happen more often than was previously thought), and offers new recommenda...
March 27, 2018 Read More

Topics: Research

2018 PWS Research Symposium and Family Conference - We Can, We Will!

March 19, 2018 Read More

Topics: Research

Study Compares Schaaf-Yang and Prader-Willi Syndromes

Dr. Christian Schaaf and his group, in collaboration with Dr. Jennifer Miller, has published a new study examining clinical similarities and differences between Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS). Dr. Schaaf was the first to d...
March 14, 2018 Read More

Topics: Research, Schaaf-Yang Syndrome

Preventing Mental Illness in PWS: New Study Identifies Early Signs

Behavior and mental health issues are important aspects in Prader-Willi syndrome (PWS), impacting many individuals with the syndrome and their families. In particular, one of the most challenging aspects for families to deal with can be symptoms of s...
February 28, 2018 Read More

Topics: Research

PWS Registry Data: Vomiting and Choking in PWS [INFOGRAPHIC]

The inability to vomit has previously been cited as a characteristic of Prader-Willi syndrome. While there is a reduction in vomiting as compared to neuro-typical peers, 54% of participants in the Global PWS Registry have vomited (n=304) indicating t...
February 22, 2018 Read More

Topics: Research, Global PWS Registry

GDF15: A New Appetite-Regulating Pathway With PWS Therapy Potential

A series of recent discoveries have defined a new pathway for regulating appetite and satiety suggesting that a naturally occurring protein in our bodies could have the potential to be a safe and effective therapy for obesity. This protein, known as ...
February 15, 2018 Read More

Topics: Research

PWS Clinical Trial: Effects Of GLWL-01 On Hyperphagia, Phase 2

GLWL Research is now recruiting patients for its Phase 2 study to evaluate the efficacy, safety and pharmacokinetics of GLWL-01 in the treatment of patients with Prader-Willi syndrome. The study will compare the effects of GLWL-01 on hyperphagia as c...
February 6, 2018 Read More

Topics: Research

Dr. Nectow Researches Role of DRN Brain Region and Hyperphagia in PWS

Researchers throughout the world are hard at work trying to identify the biological mechanism(s) that drive hyperphagia (excessive eating) in PWS. One of these scientists is Dr. Alexander Nectow at Princeton Univeristy. Dr. Nectow's group studies a r...
February 2, 2018 Read More

Topics: Research

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The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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