Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    News
    Stories of Hope
    Family Conference
    PWS Registry
    Clinical Issues
    Clinical Trials
    Behavior & Mental Health
    Schaaf-Yang Syndrome
    Treatments
    Resource Development
    Endocrinology
    Hyperphagia
    Genetic Therapy
    Diet and Exercise

    Treatments

    Graphic announcing “A Letter to the PWS Community from Neurocrine Biosciences,” featuring a preview of the Neurocrine letter and FPWR and Neurocrine logos.
    Neurocrine Biosciences Shares Letter with the PWS Community
    Neurocrine Biosciences has shared a letter with the Prader-Willi syndrome (PWS) community. Earlier this year, Neurocrine Biosciences acquired Soleno Therapeutics and became the new steward of VYKAT® XR (diazoxide choline) extended-release tablets. Kyle Gano, CEO of Neurocrine, has shared a
    Balancing Benefit, Risk, and Access to VYKAT XR
    As the PWS community gains more real-world experience with VYKAT XR, important conversations are taking place about how to balance the medication’s potential benefits with known risks. FPWR believes both deserve careful consideration. Recent reports of 7 deaths and more
    PWS Early Interventions: 5 Therapies for Prader-Willi Syndrome
    The time immediately following a diagnosis of PWS can be difficult, and parents are typically dealing with an overwhelming amount of new information. It's important to take the time you need to process what is happening and connect with others
    Modafinil and Daytime Sleepiness in Prader-Willi Syndrome
    Modafinil and Daytime Sleepiness in Prader-Willi Syndrome
    Excessive daytime sleepiness (EDS) is one of those symptoms of Prader-Willi syndrome (PWS) that often does not get the attention it deserves. EDS can profoundly undermine success in older children and adults with PWS. It is hard to learn anything
    Are GLP-1s Safe and Effective for People with PWS?
    You have probably heard of GLP-1 receptor agonists (GLP-1s). You may even know someone who has successfully lost weight using one of these popular medications. But what about their safety and effectiveness for people with Prader-Willi syndrome (PWS)? GLP-1s are
    Recent Publications Explore Pitolisant as a Treatment for Daytime Sleepiness in PWS
    Pitolisant for Daytime Sleepiness in PWS: New Research Findings
    Families and caregivers in the Prader-Willi syndrome (PWS) community whose loved one experiences excessive daytime sleepiness (EDS) know just how challenging it can be in daily life. Data from the Global PWS Registry show that 55% of participants experience significant
    5 Treatments to Improve Quality of Life for People with PWS
    FPWR is dedicated to advancing research and accelerating the development of safe and effective treatments for people with Prader-Willi syndrome (PWS). While significant unmet needs remain, there are several therapies—both established and emerging—that can positively impact health and quality of
    1 2

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah