Friends,

We're getting many of our loose ends tied up after the Kentucky walk and annual meeting, also trying to return to normal, whatever that is! I want to give you an overview of the walk soon, but first, a summary of the results of FPWR Month.

Let me begin by saying that FPWR Month was a tremendous success! When we considered this emphasis, we knew it would require a significant amount of work over a short period of time. At that time, we had five events scheduled and were pleased with that. By the time September actually got here, we no longer had those five events-we had 10!!! Can you believe we had 10 events over about six weeks including the fifth annual Kentucky walk for FPWR and the FPWR annual meeting? It's still unbelievable to me that so many of you gave so much of yourselves to make these events happen.

Let's look back at what we did during those few weeks. I'll add the event chair and an approximate amount of income with each event. Almost all of them still have donations coming in and the exact figures will be available within the next few weeks.

One Small Step Walk-A-Thon (second annual)
Tanya and Keegan Johnson
Toronto , Canada
$40,000 given to FPWR

A Walk in the Park for PWS Research
Lauren Roth
Seattle , Washington
$40,000

Los Angeles Walk-A-Thon
Renay Compere
Los Angeles , California
$22,000

Philadelphia Phillies Employees Tailgating Party for FPWR
Mike Stermel
Philadelphia , Pennsylvania
$1,365

Dragon Dash (second annual)
Kathryn McGhee
Dallas , Texas
$32,000

Hangar Dance (second annual)
Joyce Opp and Michelle Shirk
Lancaster , Pennsylvania
$8,000

California State Society Golf Tournament
Amy Porter
Washington , D.C.
$80,000

Family Fun Day at the Farm!
Caitlin McLaughlin
Harvard , Massachusetts
$2,000

Space Coast Technology Tennis Tournament
Carol Craig
Indian Harbor , Florida
$20,000

Kentucky Walk-A-Thon for FPWR (Fifth Annual)
Prader-Willi Friends Kentucky
Louisville , Kentucky
$30,000

With these initial numbers, we have over $275,000 right now. With money continuing to come in, especially from last week's Kentucky walk, we will come very close, if not exceed $300,000 during FPWR Month. HOW COOL IS THAT???

Thanks to all of you who have sacrificed your time, energy, and sanity to put on these events. In addition to the money we have raised, we can't even begin to count the number of people who have become aware of PWS and FPWR. I have heard stories of families who attended events who had no idea there were support groups in their areas. I have also heard of people who attended the events who because concerned about friends or relatives with symptoms similar to PWS and who will now pass on information that could lead to a new diagnosis. What a blessing!

In addition to this, we've had leaders of government, business, and civic organizations to attend these events and learn who we are and what we are doing. They are enthusiastic about going back to their circles of influence and becoming involved with us. These are the kinds of connections that will lead us into the future and maximize our effectiveness in fundraising. Thanks to all of you who made this possible. We have SO much to celebrate because of FPWR Month. You all are the best!

Rachel, happy PWS mom and proud FPWR member!!!

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