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    Reflecting on 2025 - Progress and Hope for the PWS Community
    Reflecting on 2025: A Year of Breakthroughs, Milestones, and Momentum
    As we wrap up 2025, we’re celebrating a year shaped by real progress… scientific breakthroughs, new treatment pathways, and meaningful improvements in care for people with Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS). Every step forward this year was fueled
    Managing Behavior and Flexibility in PWS: Expert Strategies
    Behavioral challenges are one of the most complex parts of Prader-Willi syndrome (PWS). Anxiety, rigidity, difficulty with transitions, and emotional overwhelm can affect daily life at home, at school, and in the community. Families often ask: Will treating hyperphagia improve
    Caregiver Perspectives: Insights on the COMPASS-PWS Trial
    Background In response to Acadia Pharmaceuticals’ announcement that the COMPASS-PWS Phase 3 trial of intranasal carbetocin did not meet its primary or secondary endpoints and would not advance further, the Foundation for Prader-Willi Research (FPWR) convened a patient forum to
    2025 Winners
    Artist of the Year 2025 Winners: Celebrating Creativity and Hope
    A special blog contribution from our 2025 FPWR Art Auction Participants. Our 2025 Artist of the Year competition was a tremendous success, raising more than $25,000 to advance Prader-Willi and Schaaf-Yang syndrome research! We are deeply grateful to every extraordinary
    5 Treatments to Improve Quality of Life for People with PWS
    FPWR is dedicated to advancing research and accelerating the development of safe and effective treatments for people with Prader-Willi syndrome (PWS). While significant unmet needs remain, there are several therapies—both established and emerging—that can positively impact health and quality of
    Aging and Health: Caring for an Adult with PWS
    Adults with Prader-Willi syndrome (PWS) may experience health and functional challenges earlier or differently than people without PWS, making proactive, PWS-informed care especially important as they age. For families supporting an adult with PWS, knowing what health changes to watch
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    Evan and Dr. Fallah