Topics: Therapeutic Development, Research, Research Blog, Sleep
Excessive daytime sleepiness (EDS) is one of those symptoms of Prader-Willi syndrome (PWS) that often does not get the attention it deserves. EDS can profoundly undermine success in older children and adults with PWS. It is hard to learn anything in ...
Understanding the endocrine system is essential for managing Prader-Willi syndrome (PWS). From infancy through adulthood, hormone-related challenges shape growth, development, metabolism, and overall health. In this 2025 FPWR Conference presentation,...
Topics: Therapeutic Development, Research
The Foundation for Prader-Willi Research (FPWR) employs a "de-risking" funding strategy to accelerate the development of new treatments for Prader-Willi syndrome (PWS). We are here to take the risks, fund new ideas, and help build the resources that ...
Topics: Therapeutic Development, Research, Schaaf-Yang Syndrome
In this 2-hour and 2-minute video, Dr. Harold van Bosse, a pediatric orthopedic surgeon at SSM Health/Saint Louis University/Cardinal Glennon Children’s Hospital, and Dr. Nora Wagner, an APTA board certified pediatrics clinical specialist, discuss or...
Topics: Therapeutic Development






