Foundation for Prader-Willi Blog (17)

FPWR-Funded Postdoc Will Investigate the MAGEL2 Gene

Drug development for new therapies begins with research and discovery. To treat PWS (Prader-Willi syndrome) and SYS (Schaaf-Yang syndrome), we need to understand the differences between individuals with these conditions and typical individuals, right...

June 14, 2023 Read More

Topics: Research, Schaaf-Yang Syndrome

Acadia Announces Phase 3 Study of ACP-101 (Intranasal Carbetocin)

Acadia Pharmaceuticals has announced the addition of a new Phase 3 development candidate to its rare disease portfolio, ACP-101 (intranasal carbetocin), for the treatment of hyperphagia in Prader-Willi syndrome (PWS).

June 13, 2023 Read More

FPWR 2023 Family Conference - New Parents Welcome!

You won’t want to miss these speakers at the 2023 FPWR Family Conference this October in Denver, CO.

June 6, 2023 Read More

Topics: Parents, Adults, Children 0-3, Advocacy

‘He Shows Me Everyday What a True Superhero Looks Like’ Says PWS Mom

A special contribution by guest blogger Heather Osterman. Max came into the world with a bang...or more accurately, a limp body, not breathing, and blue. I went from being induced, since Max was quite cozy where he was, to a long labor, to an emergen...

May 31, 2023 Read More

Topics: Stories of Hope

Innovative FPWR-Funded Projects Receive Additional Funding

FPWR’s grant program focuses on supporting innovative, high risk/high reward research in its early stages, with particular emphasis on supporting projects that will lead to new treatments for PWS.

May 23, 2023 Read More

Topics: News

FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding

FPWR is pleased to announce that we have recently awarded 13 project awards totaling $1.963M to support research aimed at advancing our understanding of Prader-Willi syndrome (PWS) and developing much-needed treatments. PWS is a complex genetic disor...

May 10, 2023 Read More

Topics: Research

A New Rat Model for the Study of Features Underlying Schaaf-Yang Syndrome

Mice have long been the preferred mammal model in research labs due to their cost, size, and tractable genetics. Their behavioral simplicity, however, limits a researcher’s options for studying the component features that may serve as surrogate measu...

May 9, 2023 Read More

Topics: Research, Schaaf-Yang Syndrome

New Venture Philanthropy Investment: Palobiofarma

The Foundation for Prader-Willi Research (FPWR) has provided a new venture philanthropy award, in the form of a convertible loan, to Palobiofarma S.L., a Spanish biopharmaceutical company focused on developing innovative treatments for serious diseas...

May 4, 2023 Read More

Topics: News

‘The Amount of Love and Light He’s Brought to Our Lives Is Immeasurable’

A special contribution by guest blogger Rebecca Noel On May 25th our beautiful son Bron arrived to our tears of joy. He was so tiny and precious, and needed time in the NICU. He seemed to be making wonderful progress and we were full of hope. We had ...

May 2, 2023 Read More

Topics: Stories of Hope

FPWR Blog

Categories

FPWR-Funded Postdoc Will Investigate the MAGEL2 Gene

Acadia Announces Phase 3 Study of ACP-101 (Intranasal Carbetocin)

FPWR 2023 Family Conference - New Parents Welcome!

‘He Shows Me Everyday What a True Superhero Looks Like’ Says PWS Mom

Innovative FPWR-Funded Projects Receive Additional Funding

FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding

A New Rat Model for the Study of Features Underlying Schaaf-Yang Syndrome

New Venture Philanthropy Investment: Palobiofarma

‘The Amount of Love and Light He’s Brought to Our Lives Is Immeasurable’

About FPWR

Main Menu

Our Mission

Contact Us