Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    News
    Stories of Hope
    Family Conference
    PWS Registry
    Clinical Trials
    Clinical Issues
    Behavior & Mental Health
    Schaaf-Yang Syndrome
    Treatments
    Resource Development
    Endocrinology
    Hyperphagia
    Genetic Therapy
    Partnership with CombinedBrain Establishes Biorepository for PWS & SYS
    Biorepositories play a crucial role in rare disease research, serving as central locations for collecting, storing, and distributing samples such as tissues, blood, and cells. The Foundation for Prader-Willi Research, in partnership with COMBINEDBrain, has established PWS and SYS biorepositories
    PWS Registry Data: Dental Issues [INFOGRAPHIC]
    Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva production, combined with challenges that individuals with special needs may have with maintaining good oral hygiene. Here, we focus on data from the Global
    FPWR-Funded Postdoc Will Investigate the MAGEL2 Gene
    Drug development for new therapies begins with research and discovery. To treat PWS (Prader-Willi syndrome) and SYS (Schaaf-Yang syndrome), we need to understand the differences between individuals with these conditions and typical individuals, right down to the cellular level. Once
    Innovative FPWR-Funded Projects Receive Additional Funding
    FPWR’s grant program focuses on supporting innovative, high risk/high reward research in its early stages, with particular emphasis on supporting projects that will lead to new treatments for PWS. One important objective of the grant program is to provide funding
    fpwr-announces-largest-round-of-grant-funding-to-date
    FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding
    FPWR is pleased to announce that we have recently awarded 13 project awards totaling $1.963M to support research aimed at advancing our understanding of Prader-Willi syndrome (PWS) and developing much-needed treatments. PWS is a complex genetic disorder that affects an
    New Venture Philanthropy Investment: Palobiofarma
    The Foundation for Prader-Willi Research (FPWR) has provided a new venture philanthropy award, in the form of a convertible loan, to Palobiofarma S.L., a Spanish biopharmaceutical company focused on developing innovative treatments for serious diseases. Palobiofarma has a robust pipeline
    Small Community, Big Impact
    FPWR’s community is made up of parents like you, determined to make a difference for our loved ones with PWS. Hosting a fundraiser is a meaningful way to support research, and it doesn’t have to take a lot of time
    Previous 17 18 19 20 21

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah