Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    News
    Stories of Hope
    Family Conference
    PWS Registry
    Clinical Trials
    Clinical Issues
    Behavior & Mental Health
    Schaaf-Yang Syndrome
    Treatments
    Resource Development
    Endocrinology
    Hyperphagia
    Genetic Therapy
    recent-advances-in-drug-development-bring-treatments-within-reach-for-pws
    Recent Advances in Drug Development Bring Treatments Within Reach for PWS
    Exciting developments are sweeping through the PWS community, spotlighting two potential treatments: Soleno’s DCCR and Aardvark’s ARD-101. Recognition of the PWS community's involvement must be given, as hundreds of volunteers have participated in PWS clinical trials and the Global PWS
    FPWR Announces 1st Round of 2024 Grants
    We are pleased to announce the recipients of our first round of grants for 2024, totaling more than $1,000,000 in awards, as part of the Foundation for Prader-Willi Research's (FPWR) ongoing commitment to advancing research in Prader-Willi (PWS) and Schaaf-Yang
    advancing-prader-willi-syndrome-care-with-the-new-pws-profile-tool
    The PWS Profile: A Tool for Measuring Behavioral and Emotional Symptoms in PWS
    Prader-Willi syndrome affects much more than appetite. Behavioral and emotional challenges—including rigidity, anxiety, compulsive behaviors, repetitive questioning, and temper outbursts—can have a significant impact on daily life. For researchers developing treatments for PWS, measuring these symptoms is an important challenge.
    Sharing Strength for PWS Awareness Month
    Sharing Strength for PWS Awareness Month
    May marks Prader-Willi Syndrome (PWS) Awareness Month, shedding light on the complex genetic disorder that brings various challenges to individuals. However, it's important to remember that PWS doesn't define the incredible individuals living with it. To honor this month, we
    pws-registry-data:-skin-picking-in-pws
    PWS Registry Data: Skin Picking in PWS [INFOGRAPHIC]
    Individuals with PWS often exhibit a variety of self-injurious behaviors, and one of the most common of these is skin picking. Individuals typically start with a fixation on some imperfection in the skin. This can be a rough or dry
    Blog Post - conference video - Behavior and Mental Health - Age 5 and Up
    Behavior and Mental Health - Age 5 and Up [2023 CONFERENCE VIDEO]
    In this 30‑minute video, Patrice Carroll, Elizabeth Roof, and Dr. Deepan Singh discuss strategies for addressing behavioral and mental health challenges in children aged 5 and up with Prader-Willi syndrome. Click below to watch the video. If you're short on
    share-your-rare-hopefull-highlights
    Share Your Rare: HopeFull Highlights
    As Rare Disease Day approaches on February 29, we want to spotlight the extraordinary qualities of our children with Prader-Willi syndrome, celebrating their unique passions and contributions to the world. Our objective is simple: to inspire hope. We know our
    New Research into the Sense of Smell in PWS
    New Research into the Sense of Smell in PWS
    It is well established in science as well as culture that the smell of food is linked to appetite, but despite the extensive research being conducted to understand the biology underlying the most notable symptom of Prader-Willi Syndrome, hyperphagia, little
    Previous 14 15 16 17 18

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah