Foundation for Prader-Willi Blog (65)

Your Child Can Do Anything! Don't Limit Them

A special contribution by guest blogger Jennifer Hannabass Jennifer shared her story via our Stories of Hope questionnaire.

November 25, 2016 Read More

Topics: Stories of Hope

It's Not Normal, It's Better: A Letter to Prader-Willi Siblings

A special contribution by guest blogger Courtney Smith A letter to Prader-Willi siblings: Recently, a woman asked if I would be willing to speak with her teenage daughter, who was struggling with having a brother with Prader-Willi Syndrome. Of course...

November 23, 2016 Read More

Topics: Stories of Hope

Improving Social Functioning in PWS [VIDEO]

“People with PWS have a real need to actually connect with others and have relationships." This was one of the many valuable insights shared by Elizabeth Roof, Senior Research Specialist at Vanderbilt University, and other panelists addressing social...

November 21, 2016 Read More

Topics: Research

Parents of Children With Special Needs: We're Unstoppable!

A special contribution by guest blogger Rosemarie Rouse Rosemarie shared her story via our Stories of Hope questionnaire.

November 17, 2016 Read More

Topics: Stories of Hope

She's Shown Us Our Own Strength, Determination, Love and Acceptance

A special contribution by guest blogger Anne Fricke When Freya was little, her parents weren’t sure what her future would hold. At two and a half, she was still not walking well, and every milestone felt like a mountain to climb. Today, at almost fiv...

November 10, 2016 Read More

Topics: Stories of Hope

Sleep Issues in PWS: Presentation by Dr. Thomas Scammell [VIDEO]

Many individuals with PWS experience significant disruption of daily life as a result of sleep issues. Daytime sleepiness, abnormal REM sleep, narcolepsy, and cataplexy are common sleep-related symptoms of PWS, however their underlying cause is unkno...

November 3, 2016 Read More

Topics: Research

Every Donation Will Be Matched Until Thanksgiving!

We need your help and there has never been a better time to DOUBLE your impact! From now until Thanksgiving, EVERY donation made to our organization will be MATCHED by Leon and Irina Shaulov.

November 2, 2016 Read More

Topics: News