Foundation for Prader-Willi Blog (65)

Prader Willi Behavioral Issues May Be Tied to Low GABA Levels in Brain

Adolescents and adults with PWS often struggle with temper outbursts, compulsive behaviors, and self-injurious behaviors such as skin-picking. These behavioral challenges impact the quality of life for those with PWS and for their families and caregi...

August 2, 2016 Read More

Topics: Research

Can PWS Interventions Be Delivered By Telehealth?

Telehealth, or the "delivery of health-related services and information via telecommunications" such as through a computer is a growing trend in health care. A recent report from a group at Michigan State University shows how their online program is ...

July 27, 2016 Read More

Topics: Research

Intellectual Disability Treatment: New Down Syndrome Possibilities

One of the fundamental questions in research for complex neurodevelopmental disorders such as PWS is – can the cognitive challenges of the disorder ever be improved using drugs or supplements? A decade ago, most scientists would have argued that the ...

July 21, 2016 Read More

Topics: Research

Cavaille's Newly Funded Ribosomal Research Shows Promise for PWS

Dr. Jerome Cavaille and his team at the University of Toulouse in France recently received a three-year grant from the French Foundation for Medical Research for the project "Prader-Willi syndrome and C/D small nucleolar RNA genes." They hypothesize ...

July 18, 2016 Read More

Topics: Research

How Children With Language Delays Can Succeed in the Classroom

Within the general population, there is a reading crisis in America. Many Americans only achieve a fifth- or sixth-grade reading level. If that's the case with the general population, how serious is the problem among those who have severe speech/lang...

July 15, 2016 Read More

Topics: Research

Feeding Children with PWS: Speaker Melanie Silverman

Feeding difficulties are common in young children with Prader-Willi syndrome, and it's common for parents to struggle with feeding children with PWS. Many parents seek nutrition advice to help implement a healthy diet, and over the past 12 years, hun...

July 14, 2016 Read More

Topics: Research

What Is Prader-Willi Syndrome? A Primer for Parents

As a parent of a child with Prader-Willi syndrome (PWS), I want to tell every parent who's just received a diagnosis: don't believe everything you read! At the same time, there are a few basic facts about PWS that are helpful to know, and in this blo...

July 13, 2016 Read More

Mental Health in PWS – Mindfulness, Exercise May Help

Staying mentally well can be a challenge for all of us, but is particularly difficult for those with PWS. While medications can be an important part of maintaining good mental health in PWS, we're always on the lookout for approaches and intervention...

July 11, 2016 Read More

Topics: Research

First Steps After PWS Diagnosis

When you first receive your child’s Prader-Willi syndrome (PWS) diagnosis, it can feel as if his or her whole life is flashing in front of you, with an infinite list of concerns. Based on the experiences of parents involved in FPWR, here's a suggeste...

July 5, 2016 Read More

FPWR Blog

Categories

Prader Willi Behavioral Issues May Be Tied to Low GABA Levels in Brain

Can PWS Interventions Be Delivered By Telehealth?

Intellectual Disability Treatment: New Down Syndrome Possibilities

Cavaille's Newly Funded Ribosomal Research Shows Promise for PWS

How Children With Language Delays Can Succeed in the Classroom

Feeding Children with PWS: Speaker Melanie Silverman

What Is Prader-Willi Syndrome? A Primer for Parents

Mental Health in PWS – Mindfulness, Exercise May Help

First Steps After PWS Diagnosis

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