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FPWR Blog

FPWR Proudly Awards $1.1 M to Promising Science in PWS

The Foundation for Prader-Willi Research (FPWR), is pleased to announce the awarding of $1.1 million in research grants in its second round of grant funding for 2015. A portfolio of 12 grants from leading researchers around the world was selected, wh...

Topics: Research

New insights and unexpected connections for the PWS gene, MAGEL2

Sometimes, valuable insights about “your” genetic disease can come from studies on entirely different genetic disorders that end up being connected in ways that weren’t easily appreciated at first glance.

Topics: Research

Potential PWS Treatments Currently in Development

These potential PWS treatments are in development as of July 2015:

Topics: Research

Another piece to the hyperphagia puzzle, loss of POMC neurons in PWS is progressive

This month's research blog post comes from guest author Igor Pravdivyi, a member of Dr. Rachel Wevrick's research group at the University of Alberta. Children with PWS usually begin to have increased appetite around age 5, with hyperphagia setting in...

Topics: Research

April 2015 FPWR updates, events & PWS news.

The Global PWS Registry launch is just around the corner! Watch your inbox and our Facebook page for announcements and updates. Hint: a fun challenge is coming your way!

Topics: Research

New insights into behavior and learning in PWS

Two recent papers address the very important areas of behavior and learning in PWS, and may be helpful in teaching people with PWS how to better cope and learn as they navigate through the world.

Topics: Research

Clinical Care Perspectives on PWS

The Center for Prader-Willi Syndrome at The Children’s Institute of Pittsburgh is hosting a Prader-Willi clinical conference on May 29, 2015.

Topics: Research

Exciting News and Updates: March 2015

PWS Mental Health Workshop Draws Top Clinicians and Scientists from Around the World On March 1-3, 2015, approximately 45 top mental health professionals from around the world gathered in Bethesda, Maryland to discuss behavior and mental health in Pr...

Topics: Research

Report from the Prader-Willi Syndrome Mental Health Research Strategy Workshop

On March 1-3, 2015, approximately 45 top mental health professionals from around the world gathered in Bethesda, Maryland to discuss behavior and mental health in Prader-Willi syndrome (PWS).

Topics: Research