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FPWR Blog

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Team FPWR Runs the TCS New York City Marathon

For the first time ever, the Foundation for Prader-Willi Research will be represented November 6th on the streets of New York at the largest marathon in the world – The TCS New York City Marathon! “We are excited to partner with the TCS New York City...
June 15, 2016 Read More

Topics: News

How's mom doing?

It’s not news to moms of children with PWS that ours is not an easy road. Our kids face medical problems, challenges in their schools, and often have behavioral issues that can be exhausting. Then there are the doctors’ appointments, therapies, socia...
May 26, 2016 Read More

Topics: Research

How You Can Ensure a Brighter Future

How can we make the future a bit brighter for our loved ones with Prader-Willi syndrome? It starts with us! Multiple potential drug treatments for Prader-Willi syndrome are currently in clinical trials and more are coming down the pipeline. Staying i...
April 13, 2016 Read More

Topics: Research

Why PWS Research Will Benefit Every Person with PWS

Is there a place in the FPWR community for parents of adult children with PWS? I have frequently been asked if the work of the Foundation for Prader-Willi Research is only for ‘young families’ and if there is a place in the FPWR community for parents...
April 5, 2016 Read More

Topics: Research

FPWR Announces Grant Awards totaling $870,000

The Foundation for Prader-Willi Research (FPWR), in collaboration with FPWR-Canada, FPWR-UK, Prader-Willi France and PWSA-UK, is thrilled to announce the first round of PWS research grant recipients for 2016! Ten outstanding projects were selected fo...
March 16, 2016 Read More

Topics: Research

[VIDEO] Parents Find Love and Energy In FPWR Community

We asked parents how they became involved with FPWR. This video shares their responses.
March 1, 2016 Read More

Topics: Stories of Hope, Research

Study Recruiting Participants Ages 3-11 and their Caregivers

Children between the ages of 3 and 11 who have PWS, and their caregivers, are being recruited for two intervention studies being conducted by researchers at Case Western Reserve University.
January 24, 2016 Read More

Topics: Research

FPWR Proudly Awards $1.1 M to Promising Science in PWS

The Foundation for Prader-Willi Research (FPWR), is pleased to announce the awarding of $1.1 million in research grants in its second round of grant funding for 2015. A portfolio of 12 grants from leading researchers around the world was selected, wh...
November 23, 2015 Read More

Topics: Research

New insights and unexpected connections for the PWS gene, MAGEL2

Sometimes, valuable insights about “your” genetic disease can come from studies on entirely different genetic disorders that end up being connected in ways that weren’t easily appreciated at first glance.
September 10, 2015 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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