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Foundation for Prader-Willi Blog | Behavior

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How Pretend Play Helps Children with PWS Build Social Skills

Many parents wonder how to help their child build friendships, understand emotions, and navigate everyday social situations. One powerful—and often overlooked—tool is pretend play. In this blog, guest contributor Rachel Gordon from the Neurodevelopme...
July 1, 2026 Read More

Topics: Behavior

The Impact of Sleep on Behavior and Mental Health in PWS

Sleep challenges affect more than 70% of individuals with Prader-Willi syndrome (PWS). Excessive daytime sleepiness, disrupted nighttime sleep, altered REM patterns, and sleep-disordered breathing all contribute to a complex sleep profile that affect...
March 3, 2026 Read More

Topics: Mental Health, Behavior

Anxiety and Repetitive Behaviors in PWS: Understanding the Cycle and Ways to Help

This blog is based on the presentation “Managing Repetitive Behaviors & Improving Motivation,” given by Elizabeth Roof.
February 4, 2026 Read More

Topics: Parents, Behavior

Managing Behavior and Flexibility in PWS: Expert Strategies

Behavioral challenges are one of the most complex parts of Prader-Willi syndrome (PWS). Anxiety, rigidity, difficulty with transitions, and emotional overwhelm can affect daily life at home, at school, and in the community. Families often ask: Will t...
November 18, 2025 Read More

Topics: Parents, Behavior

Clinical Trial Results Show Promise for Managing Aggression and Hyperactivity in PWS

A published study on the use of guanfacine extended release (GXR) in individuals with Prader-Willi syndrome (PWS) marks an important step forward, showing that guanfacine can improve challenging PWS behaviors, including aggression, skin-picking, and ...
July 15, 2025 Read More

Topics: Research, Behavior

School Interrupted: Three Families Share their Experiences with PWS and Excessive Daytime Sleepiness at School

Harmony Biosciences recently interviewed three families about their experiences with Prader-Willi syndrome (PWS), excessive daytime sleepiness, and school.
March 10, 2025 Read More

Topics: Behavior, Sleep

New Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS

Individuals with PWS often exhibit rigidity, obsessive-compulsive tendencies, emotional outbursts, as well as unusual thoughts and behaviors. However, the onset and severity of these behaviors vary among individuals with PWS depending on age, genetic...
February 7, 2025 Read More

Topics: Research, Behavior

Behavior and Mental Health - Age 5 and Up [2023 CONFERENCE VIDEO]

In this 30‑minute video, Patrice Carroll, Elizabeth Roof, and Dr. Deepan Singh discuss strategies for addressing behavioral and mental health challenges in children aged 5 and up with Prader-Willi syndrome.
March 14, 2024 Read More

Topics: Research, Behavior, Family Conference

Managing Behavior and Mental Health [2022 CONFERENCE VIDEO]

In this one hour and 9-minute video, Elizabeth Roof, Dr. Lauren Schwartz, and Dr. Deepan Singh explore behavior strategies and mental health issues in people with PWS.
March 23, 2023 Read More

Topics: Mental Health, Behavior, Family Conference

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Email: info@fpwr.org

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