Foundation for Prader-Willi Blog

FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding

FPWR is pleased to announce that we have recently awarded 13 project awards totaling $1.963M to support research aimed at advancing our understanding of Prader-Willi syndrome (PWS) and developing much-needed treatments. PWS is a complex genetic disor...

May 10, 2023 Read More

Topics: Research

A New Rat Model for the Study of Features Underlying Schaaf-Yang Syndrome

Mice have long been the preferred mammal model in research labs due to their cost, size, and tractable genetics. Their behavioral simplicity, however, limits a researcher’s options for studying the component features that may serve as surrogate measu...

May 9, 2023 Read More

Topics: Research, SYS

Schaaf-Yang Syndrome Across the Lifespan [2022 CONFERENCE VIDEO]

In this one hour and 22-minute video, Dr. Christian Schaaf, Department Chair of Human Genetics at Heidelberg University, discusses current research into Schaaf-Yang syndrome (SYS). Click below to watch the video. If you're short on time, scroll down ...

April 25, 2023 Read More

Topics: Research, SYS

Possible Link Found Between Erythritol and Risk of Thrombosis

You are probably aware that individuals with PWS have a slightly elevated risk for thrombosis (blood clot formation), with 8.4% of respondents aged 30-61 years reporting a history of one or more in our 2018-2022 survey, compared to <1% in the non-...

April 11, 2023 Read More

Topics: Research

A Link Between Exercise Motivation and the Gut Microbiome

Do you ever wonder why you’re so strongly motivated to exercise while it seems that some others inexplicably aren’t? The answer may lie in the differences between your gut microbiomes! Nature, the world’s leading multidisciplinary science journal, re...

March 7, 2023 Read More

Topics: Research

PWS Registry Data: Mental Health Therapies [INFOGRAPHIC]

As a rare disorder, PWS is most well-known to the medical community and general population for hyperphagia, or intense food-seeking behavior. However, family members, caregivers, and individuals with PWS know that behavior difficulties and mental hea...

March 6, 2023 Read More

Topics: Research

Medical Devices Offer New Opportunities to Alleviate Symptoms of PWS

FPWR is investigating several devices that have been proven effective in treating a myriad of symptoms associated with other medical conditions & have considerable potential to relieve symptoms of PWS. Devices offer many advantages including an e...

February 22, 2023 Read More

Topics: Research

Can Breakthrough Obesity Drugs Wegovy and Tirzapatide Deliver in PWS?

You’re probably seen at least one headline heralding the remarkable successes of Novo Nordisk’s drug Wegovy (Semaglutide, 2.4 mg) and Eli Lily’s tirzepatide (currently only approved for type 2 diabetes – likely to be approved for weight loss later th...

February 7, 2023 Read More

Topics: Research

Demographics and Comorbidities Among Hospitalized Patients With PWS

Dr. James Luccarelli, a researcher at Massachusetts General Hospital, recently published a study summarizing the demographic characteristics and medical complications of individuals with PWS who were treated at acute care hospitals in the United Stat...

January 18, 2023 Read More

Topics: Research

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Categories

FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding

A New Rat Model for the Study of Features Underlying Schaaf-Yang Syndrome

Schaaf-Yang Syndrome Across the Lifespan [2022 CONFERENCE VIDEO]

Possible Link Found Between Erythritol and Risk of Thrombosis

A Link Between Exercise Motivation and the Gut Microbiome

PWS Registry Data: Mental Health Therapies [INFOGRAPHIC]

Medical Devices Offer New Opportunities to Alleviate Symptoms of PWS

Can Breakthrough Obesity Drugs Wegovy and Tirzapatide Deliver in PWS?

Demographics and Comorbidities Among Hospitalized Patients With PWS

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