Foundation for Prader-Willi Blog

Growing Up Alongside PWS: The Hidden Struggles and Strengths of Siblings

Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares insights on supporting siblings and recognizing serious mental health challenges in her new guide. Raising a family is never easy, and parenting a child with PWS ad...

April 10, 2025 Read More

Topics: Resource Development, Research, Parents

Growing Up With a Sibling With PWS: Insights from the FPWR Conference

At the 2024 FPWR Conference, the session "Growing Up with a Sibling with PWS" offered a heartfelt and detailed look into the experiences of siblings of children with Prader-Willi Syndrome (PWS). Led by Dr. Lauren Schwartz Roth, a researcher and mothe...

December 12, 2024 Read More

Topics: Research, Parents

Inside FPWR’S Research Program: An Interview with the Research Team

Welcome to an inside look at some of the impactful research FPWR is supporting to improve the lives of individuals with Prader-Willi syndrome (PWS). In this interview, four of our dedicated research team members—Theresa Strong, Marc Ridilla, Lisa Bur...

December 10, 2024 Read More

Topics: Research, Research Blog

Reflecting on 2024: A Year of Progress & Promise for the PWS Community

As 2024 draws to a close, we at the Foundation for Prader-Willi Research (FPWR) are reflecting on a year filled with progress, promise, and hope. This year’s achievements wouldn’t have been possible without the incredible dedication of our community—...

December 4, 2024 Read More

Topics: Research

Recap of the PWS-CLIC Meeting in Atlanta

The PWS-Clinical Investigation Collaborative (PWS-CLIC), a network of PWS clinical experts formally established in 2021 and supported by FPWR, held their annual meeting in Atlanta, Georgia, in conjunction with the FPWR Research Symposium and Family C...

November 26, 2024 Read More

Topics: Research

De-Risking Treatment Development: Paving the Way for Therapeutic Successes

The Foundation for Prader-Willi Research (FPWR) employs a "de-risking" funding strategy to accelerate the development of new treatments for Prader-Willi syndrome (PWS). We are here to take the risks, fund new ideas, and help build the resources that ...

November 19, 2024 Read More

Topics: Therapeutic Development, Research, SYS

FPWR Announces 2nd Round of 2024 Grants

We are pleased to announce the recipients of our second round of grants for 2024, totaling $1,681,781 in awards, as part of the Foundation for Prader-Willi Research’s (FPWR) ongoing commitment to advancing research in Prader-Willi syndrome (PWS) and ...

November 13, 2024 Read More

Topics: Research, SYS

Blood Clots in PWS: Risk Factors, Signs & Symptoms

Although rare overall, people with PWS have a higher risk for developing dangerous blood clots than the general population. A blood clot is a mass of blood that has changed from its liquid state into a semi-solid or gel-like form.

November 8, 2024 Read More

Topics: Research

How Should I Talk with My Child About Their PWS Diagnosis?

How should I talk with my child about their PWS diagnosis? This is a question many parents ask as their child grows and differences between them and their typical peers may become more apparent. Will discussing the PWS diagnosis empower their child t...

November 7, 2024 Read More

Topics: Research

Foundation for Prader-Willi Blog | Research (2)

Categories

Growing Up Alongside PWS: The Hidden Struggles and Strengths of Siblings

Growing Up With a Sibling With PWS: Insights from the FPWR Conference

Inside FPWR’S Research Program: An Interview with the Research Team

Reflecting on 2024: A Year of Progress & Promise for the PWS Community

Recap of the PWS-CLIC Meeting in Atlanta

De-Risking Treatment Development: Paving the Way for Therapeutic Successes

FPWR Announces 2nd Round of 2024 Grants

Blood Clots in PWS: Risk Factors, Signs & Symptoms

How Should I Talk with My Child About Their PWS Diagnosis?

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