Foundation for Prader-Willi Blog

Inside the Cell: MAGEL2 Mislocalization and What It Means for SYS Research

What if the key to treating a rare genetic condition lies not just in whether a protein is present—but in where it ends up inside the cell? This is the case with the MAGEL2 protein, which plays a critical role in cell function and is missing or alter...

May 27, 2025 Read More

Topics: Research, Schaaf-Yang Syndrome

FPWR Announces 1st Round of 2025 Grants

We are pleased to announce the recipients of our first round of grants for 2025, totaling $1,198,949 in awards, as part of the Foundation for Prader-Willi Research’s (FPWR) ongoing commitment to advancing research in Prader-Willi syndrome (PWS) and S...

May 14, 2025 Read More

Topics: Research, Schaaf-Yang Syndrome

Can We Treat Circadian Rhythm Disruption in PWS? New Research Offers Hope

Human beings have adapted to our planet's 24-hour days. The body goes through daily cycles that affect things like metabolism, physical functions, and mood—these 24-hour cycles are called the circadian rhythm. What you may not know is that this adapt...

May 7, 2025 Read More

Topics: Research, Sleep

We Need 15 Minutes of Your Time: Help Advance PWS Treatments by Joining the MY-HQ Project

We’re excited to share an important opportunity for families in the Prader-Willi syndrome (PWS) community to contribute to groundbreaking research that could help shape the future of treatments for hyperphagia. The MY-HQ ("my hyperphagia questionnair...

May 1, 2025 Read More

Topics: Hunger Satiety, Research, Parents, Adults, Children 12-18

Growing Up Alongside PWS: The Hidden Struggles and Strengths of Siblings

Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares insights on supporting siblings and recognizing serious mental health challenges in her new guide. Raising a family is never easy, and parenting a child with PWS ad...

April 10, 2025 Read More

Topics: Resource Development, Research, Parents

Growing Up With a Sibling With PWS: Insights from the FPWR Conference

"Growing Up with a Sibling with PWS," recorded at our 2024 Family Conference, is a heartfelt and detailed presentation that explores the experiences of siblings of children with Prader-Willi Syndrome (PWS). Led by Dr. Lauren Schwartz Roth, a research...

December 12, 2024 Read More

Topics: Research, Parents

Inside FPWR’S Research Program: An Interview with the Research Team

Welcome to an inside look at some of the impactful research FPWR is supporting to improve the lives of individuals with Prader-Willi syndrome (PWS). In this interview, four of our dedicated research team members—Theresa Strong, Marc Ridilla, Lisa Bur...

December 10, 2024 Read More

Topics: Research, Research Blog

Reflecting on 2024: A Year of Progress & Promise for the PWS Community

As 2024 draws to a close, we at the Foundation for Prader-Willi Research (FPWR) are reflecting on a year filled with progress, promise, and hope. This year’s achievements wouldn’t have been possible without the incredible dedication of our community—...

December 4, 2024 Read More

Topics: Research

Recap of the PWS-CLIC Meeting in Atlanta

The PWS-Clinical Investigation Collaborative (PWS-CLIC), a network of PWS clinical experts formally established in 2021 and supported by FPWR, held their annual meeting in Atlanta, Georgia, in conjunction with the FPWR Research Symposium and Family C...

November 26, 2024 Read More

Topics: Research

Foundation for Prader-Willi Blog | Research (2)

Categories

Inside the Cell: MAGEL2 Mislocalization and What It Means for SYS Research

FPWR Announces 1st Round of 2025 Grants

Can We Treat Circadian Rhythm Disruption in PWS? New Research Offers Hope

We Need 15 Minutes of Your Time: Help Advance PWS Treatments by Joining the MY-HQ Project

Growing Up Alongside PWS: The Hidden Struggles and Strengths of Siblings

Growing Up With a Sibling With PWS: Insights from the FPWR Conference

Inside FPWR’S Research Program: An Interview with the Research Team

Reflecting on 2024: A Year of Progress & Promise for the PWS Community

Recap of the PWS-CLIC Meeting in Atlanta

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