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Foundation for Prader-Willi Blog | Research (9)

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New PWS β-Cell Model Reveals Details Underlying Insulin Secretion Defects

Sugar glucose is the body’s primary source of energy. Maintaining a healthy level of glucose in blood (not too high or too low), so that it can be delivered to all the other tissues of the body, is regulated by the hormone insulin. Insulin is produce...
July 25, 2023 Read More

Topics: Research

Exciting New Treatment May Reduce Disruptive Behaviors in PWS

Evidence from FPWR-supported studies shows that Vagus Nerve Stimulation (VNS) may reduce temper outbursts and other disruptive behaviors in individuals with PWS. With your support, FPWR is taking the steps needed to advance a clinical trial of a VNS ...
July 25, 2023 Read More

Topics: Research

PWS Registry Data: Dental Issues [INFOGRAPHIC]

Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva production, combined with challenges that individuals with special needs may have with maintaining good oral hygiene. Here, we focus on data from the Global PWS...
June 26, 2023 Read More

Topics: Research

FPWR-Funded Postdoc Will Investigate the MAGEL2 Gene

Drug development for new therapies begins with research and discovery. To treat PWS (Prader-Willi syndrome) and SYS (Schaaf-Yang syndrome), we need to understand the differences between individuals with these conditions and typical individuals, right...
June 14, 2023 Read More

Topics: Research, Schaaf-Yang Syndrome

FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding

FPWR is pleased to announce that we have recently awarded 13 project awards totaling $1.963M to support research aimed at advancing our understanding of Prader-Willi syndrome (PWS) and developing much-needed treatments. PWS is a complex genetic disor...
May 10, 2023 Read More

Topics: Research

Possible Link Found Between Erythritol and Risk of Thrombosis

You are probably aware that individuals with PWS have a slightly elevated risk for thrombosis (blood clot formation), with 8.4% of respondents aged 30-61 years reporting a history of one or more in our 2018-2022 survey, compared to <1% in the non-...
April 11, 2023 Read More

Topics: Research

A Link Between Exercise Motivation and the Gut Microbiome

Do you ever wonder why you’re so strongly motivated to exercise while it seems that some others inexplicably aren’t? The answer may lie in the differences between your gut microbiomes! Nature, the world’s leading multidisciplinary science journal, re...
March 7, 2023 Read More

Topics: Research

PWS Registry Data: Mental Health Therapies

As a rare disorder, PWS is most well-known to the medical community and general population for hyperphagia, or intense food-seeking behavior. However, family members, caregivers, and individuals with PWS know that behavior difficulties and mental hea...
March 6, 2023 Read More

Topics: Research

Medical Devices Offer New Opportunities to Alleviate Symptoms of PWS

FPWR is investigating several devices that have been proven effective in treating a myriad of symptoms associated with other medical conditions & have considerable potential to relieve symptoms of PWS. Devices offer many advantages including an e...
February 22, 2023 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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